Centre for Economic and Social Research on Dementia, National University of Ireland Galway, Ireland.
Centre for Teaching and Learning, Maynooth University, Ireland.
Gerontologist. 2021 Apr 3;61(3):e85-e100. doi: 10.1093/geront/gnz159.
Personhood is considered the cornerstone of person-centered care for people with dementia. However, there is little research on personhood in dementia care from the perspective of the person with dementia themselves. This article presents a qualitative evidence synthesis of the experiences and perceptions of people with dementia on personhood in dementia care.
A systematic search of nine databases was conducted. In addition to initial screening, CART analysis was used to determine the most relevant papers. Thematic synthesis was conducted on 20 papers. The CASP tool was used to examine the quality of the included papers. GRADE CERQual analysis examined confidence in the review findings.
People with dementia experience many changes due to the disease and the experience of being cared for in different settings. Personhood is affirmed through personal interactions with family, friends, other care recipients, and formal caregivers, as well as through continued engagement in social and occupational roles.
The review has important implications for practice, regulation, and policy. The person and their personhood should be protected rather than undermined, and relationships should be enhanced not diminished by the formal care process. The focus should be on creating and amplifying opportunities for people with dementia to affirm the self through interactions with others and engaging in occupational and social roles to ensure continuity of self.
人格被认为是痴呆症患者以患者为中心护理的基石。然而，从痴呆症患者自身的角度来看，关于痴呆症护理中的人格问题的研究甚少。本文对痴呆症患者对痴呆症护理中的人格的体验和看法进行了定性证据综合。
系统检索了九个数据库。除了初始筛选外，还使用 CART 分析确定了最相关的论文。对 20 篇论文进行了主题综合。使用 CASP 工具检查了纳入论文的质量。GRADE CERQual 分析检查了对综述结果的信心。
痴呆症患者因疾病和在不同环境中接受护理而经历了许多变化。人格通过与家人、朋友、其他护理接受者以及正式护理人员的个人互动，以及通过继续参与社会和职业角色来得到肯定。
该综述对实践、监管和政策具有重要意义。应保护个人及其人格，而不是破坏它，并且应通过正式护理过程增强关系，而不是削弱关系。重点应放在创造和扩大机会上，让痴呆症患者通过与他人互动和参与职业和社会角色来肯定自我，以确保自我的连续性。
