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自主及其与痴呆症中人格构建的相关性:主题综合分析。

Autonomy and its relevance for the construction of personhood in dementia- a thematic synthesis.

机构信息

Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Stockumer Str. 12, 58453, Witten, Germany.

Department für Pflegewissenschaft, Fakultät für Gesundheit, Universität Witten/Herdecke, Witten, Germany.

出版信息

BMC Geriatr. 2024 Mar 14;24(1):255. doi: 10.1186/s12877-024-04808-6.

DOI:10.1186/s12877-024-04808-6
PMID:38486169
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10941450/
Abstract

BACKGROUND

This article examines the concept of autonomy in the context of person-centred dementia research and care, which is frequently being used but not clearly defined. Also, there is no clear conceptual relation between autonomy and personhood in this context.

METHODS

Therefore, literature on person-centred dementia research and care was examined to answer the following question: How is the concept of autonomy discussed in person-centred dementia research and care literature?

RESULTS

This analysis revealed heterogeneous perspectives on autonomy within the context of dementia. These were assigned to two different perspectives on personhood: one that links personhood to the existing cognitive abilities and the other one, that understands personhood relationally as the result of a socially constructed process. These results are discussed with regard to a nursing and care practice that could be considered as being deficit-oriented, but also with regard to the concept of social health in dementia.

CONCLUSIONS

Derived from this analysis, there is a clear need for general conceptual sensitivity in this field. Also, an in-depth examination of the social constructionist approach to personhood in the context of dementia is warranted.

摘要

背景

本文考察了以患者为中心的痴呆症研究和护理背景下自主性的概念,该概念虽频繁使用但并未明确定义。此外,在这种情况下,自主性和人格之间没有明确的概念关系。

方法

因此,本文查阅了以患者为中心的痴呆症研究和护理文献,以回答以下问题:自主性概念在以患者为中心的痴呆症研究和护理文献中是如何讨论的?

结果

这项分析揭示了痴呆症背景下自主性的异质观点。这些观点被分配到两种不同的人格观点上:一种将人格与现有的认知能力联系起来,另一种则将人格理解为社会建构过程的结果。本文结合护理和关怀实践,对这些结果进行了讨论,这些实践既可以被视为以缺陷为导向,也可以被视为痴呆症中的社会健康概念。

结论

从这项分析中可以明显看出,该领域需要普遍的概念敏感性。此外,有必要深入研究痴呆症背景下人格的社会建构主义方法。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e69c/10941450/32b1dde32406/12877_2024_4808_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e69c/10941450/32b1dde32406/12877_2024_4808_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e69c/10941450/32b1dde32406/12877_2024_4808_Fig1_HTML.jpg

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本文引用的文献

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2
Social health in dementia care: harnessing an applied research agenda.痴呆症护理中的社会健康:利用应用研究议程。
Int Psychogeriatr. 2018 Jun;30(6):775-778. doi: 10.1017/S1041610217002769.
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The Fundamentals of Person-Centered Care for Individuals With Dementia.《面向痴呆症个体的以人为本的护理基础》。
Gerontologist. 2018 Jan 18;58(suppl_1):S10-S19. doi: 10.1093/geront/gnx122.
4
Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice.社会健康与痴呆症:关于该概念的操作化以及研究与实践方向的欧洲共识。
Aging Ment Health. 2017 Jan;21(1):4-17. doi: 10.1080/13607863.2016.1254596. Epub 2016 Nov 21.
5
Social health and dementia: the power of human capabilities.社会健康与痴呆症:人类能力的力量。
Int Psychogeriatr. 2016 May;28(5):701-3. doi: 10.1017/S1041610216000260. Epub 2016 Mar 9.
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What is family-centered care for nursing home residents with advanced dementia?对于患有晚期痴呆症的养老院居民,什么是以家庭为中心的护理?
Am J Alzheimers Dis Other Demen. 2013 Dec;28(8):763-8. doi: 10.1177/1533317513504613. Epub 2013 Oct 1.
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'Like a prison without bars': dementia and experiences of dignity.“宛如没有栅栏的牢笼”:痴呆症与尊严体验
Nurs Ethics. 2013 Dec;20(8):881-92. doi: 10.1177/0969733013484484. Epub 2013 May 23.
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Philosophical issues in dementia.痴呆症的哲学问题。
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How should we define health?我们应该如何定义健康?
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A concept analysis of person-centered care.以患者为中心的护理的概念分析
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