van Andel Steven, Holkenborg Anouk
IJsselheem, Engelenbergplantsoen 3, 8266 AB Kampen, The Netherlands.
Healthcare (Basel). 2024 Jul 15;12(14):1412. doi: 10.3390/healthcare12141412.
With the growing numbers of people living in old age, a system that sustains autonomy, dignity and freedom of movement for people living with dementia (PwD) needs to be installed. However, due to the cognitive constraints in the cohort of PwD, traditional qualitative methods of inquiry, such as interviews, are often not a good match. This study aimed to use creative qualitative assessment tools to assess the values and opinions of PwD in nursing homes on freedom and safety. Twenty-two nursing home residents with memory problems participated in this study. Important themes related to freedom and safety were identified using a diverse set of methodologies. Overall, residents had a similar view on 'safety', relating this to having a homely environment where people look out for you, with a good balance between busy and quiet areas and being able to retain cognitive and physical function. Values around freedom were more diverse. Residents who were still capable of logical speech generally voiced a wish for independence, making one's own decisions and wanting to go outside. For residents who no longer spoke, freedom seemed to be experienced more through the connection to other people. These results show that PwD still have distinct personal values concerning freedom and safety, which should be given due consideration in decision-making regarding nursing home policy, thereby potentially improving the quality of life of PwD.
随着老年人口数量的不断增加，需要建立一个能维持痴呆症患者自主性、尊严和行动自由的体系。然而，由于痴呆症患者群体存在认知限制，传统的定性研究方法，如访谈，往往不太适用。本研究旨在使用创新性定性评估工具，评估养老院中痴呆症患者对自由和安全的价值观及看法。22名有记忆问题的养老院居民参与了本研究。通过多种方法确定了与自由和安全相关的重要主题。总体而言，居民们对“安全”的看法相似，将其与拥有一个人们相互照顾的家庭式环境、繁忙与安静区域的良好平衡以及能够保持认知和身体功能联系起来。关于自由的价值观则更为多样。仍能进行逻辑言语表达的居民普遍表达了对独立、自己做决定以及外出的渴望。对于不再说话的居民来说，自由似乎更多地是通过与他人的联系来体验。这些结果表明，痴呆症患者在自由和安全方面仍有独特的个人价值观，在制定养老院政策的决策过程中应予以充分考虑，从而有可能提高痴呆症患者的生活质量。
