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为何要让公众参与基因编辑治理的审议?

Why Include the Public in Genome Editing Governance Deliberation?

作者信息

Blasimme Alessandro

机构信息

A senior scientist at the Swiss Federal Institute of Technology in Zurich, Switzerland.

出版信息

AMA J Ethics. 2019 Dec 1;21(12):E1065-1070. doi: 10.1001/amajethics.2019.1065.

Abstract

With the birth of genetically engineered twins in November 2018, international debate about human genome editing governance has moved from an emphasis on mutual engagement among multiple stakeholders to a self-regulatory model enacted through high-level expert groups with little or no public input. This article reconstructs this paradigm shift and suggests that inclusive public deliberation should still have a role in public decision making about genome editing.

摘要

随着2018年11月基因编辑双胞胎的诞生,关于人类基因组编辑治理的国际辩论已从强调多个利益相关者之间的相互参与,转向通过几乎没有或完全没有公众参与的高级别专家组制定的自我监管模式。本文重构了这一范式转变,并表明包容性的公众审议在关于基因组编辑的公共决策中仍应发挥作用。

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