Maine Women Writers Collection, University of New England, Portland, Maine, USA.
J Med Humanit. 2020 Mar;41(1):53-64. doi: 10.1007/s10912-019-09599-1.
Martha A. Hall's artists' books documenting her experience of living with breast cancer offer future health professionals a unique opportunity to sit in the patient's position of vulnerability and fear. Hall's books have become a cornerstone of our medical humanities pedagogy at the Maine Women Writers Collection because of their emotional directness and their impact on readers. This essay examines the ways that Hall's call for conversation with healthcare providers is enacted at the University of New England and provides a model for how such works might be used at other educational institutions to encourage empathy between practitioners and patients by engaging in conversations about anger, fear, and other common reactions to life-threatening illness. We explore the unruly nature of Martha A. Hall's narratives of illness and care, as well as how the form of the books themselves engages the reader in a deep relationship with Hall's personal pain and her humanity itself. We explore, too, the cumulative effect of these powerful books on readers who handle them regularly, as we do in our roles as professor and archivist.
玛莎·A·霍尔（Martha A. Hall）的艺术家书籍记录了她与乳腺癌共存的经历，为未来的医疗保健专业人员提供了一个独特的机会，让他们能够站在患者脆弱和恐惧的立场上。由于其情感的直接性及其对读者的影响，霍尔的书籍已成为缅因州女性作家收藏馆医学人文学教学的基石。本文探讨了霍尔呼吁与医疗保健提供者进行对话的方式在新英格兰大学的实施情况，并提供了一个模型，说明如何在其他教育机构使用此类作品，通过就愤怒、恐惧和其他对危及生命的疾病的常见反应进行对话，鼓励从业者和患者之间的同理心。我们探讨了玛莎·A·霍尔（Martha A. Hall）有关疾病和护理的叙述的不规则性质，以及书籍本身的形式如何使读者与霍尔的个人痛苦及其人性本身建立深厚的关系。我们还探讨了这些强大书籍对经常处理它们的读者的累积影响，我们作为教授和档案管理员也会这样做。
