Longstreth Morgan, McKibbin Christine, Steinman Bernard, Slosser Worth Andrea, Carrico Catherine
Department of Psychology, University of Wyoming, Laramie, Wyoming, USA.
Department of Family and Consumer Sciences, University of Wyoming, Laramie, Wyoming, USA.
Clin Gerontol. 2022 Jul-Sep;45(4):808-820. doi: 10.1080/07317115.2019.1710735. Epub 2020 Jan 10.
: The provision of information and referral (I&R) and connection to support services is crucial for individuals with Alzheimer's disease and related dementias (ADRD) and their informal caregivers, especially in rural and remote regions where care and support resources may be limited. The purpose of this study was to develop a deeper understanding of needs for I&R from community stakeholders across a rural and remote state.: A series of town hall meetings were conducted across ten communities in a frontier state.: Participants were 175 adults with a mean age of approximately 60 years (SD = 15 years); a majority were non-Hispanic white, female, and self-identified as informal caregivers. Three themes emerged as primary areas of need: (1) to address stigma related to ADRD; (2) to improve the availability of dementia-related I&R; and (3) to efficiently disseminate dementia-related I&R.: Findings suggest the importance of a single point of access for I&R with presence in local communities as well as initial and ongoing assessment and provision of appropriate I&R throughout the course of ADRDs.: Existing community resources and funding support should be leveraged for multiple points and means of access to reliable I&R.
为患有阿尔茨海默病及相关痴呆症(ADRD)的个人及其非正式照护者提供信息与转介(I&R)服务以及连接支持性服务至关重要,尤其是在护理和支持资源可能有限的农村和偏远地区。本研究的目的是更深入地了解农村和偏远州的社区利益相关者对I&R服务的需求。
在一个边境州的十个社区举办了一系列市政厅会议。
参与者为175名成年人,平均年龄约60岁(标准差=15岁);大多数是非西班牙裔白人、女性,且自我认定为非正式照护者。出现了三个主要需求领域:(1)解决与ADRD相关的耻辱感;(2)提高痴呆症相关I&R服务的可及性;(3)有效传播痴呆症相关I&R服务。
研究结果表明,在当地社区设立单一的I&R服务接入点,并在ADRD病程中进行初始和持续评估以及提供适当的I&R服务非常重要。
应利用现有的社区资源和资金支持,通过多种途径和方式获取可靠的I&R服务。