Truant Tracy L O, Varcoe Colleen, Gotay Carolyn C, Thorne Sally
Former Director, Research, Education and Innovation, BC Cancer, Vancouver BC,
Professor, School of Nursing, University of British Columbia,
Can Oncol Nurs J. 2019 Jul 1;29(3):156-162. doi: 10.5737/23688076293156162. eCollection 2019 Summer.
Although models of cancer survivorship care are rapidly evolving, there is increasing evidence of health disparities among cancer survivors. In the current context, Canada's survivorship care systems privilege some and not others to receive high-quality care and optimize their health outcomes. The aim of this study was to improve survivorship care systems by helping clinicians and decision makers to a better understanding of how various psychosocial/political factors, survivors' health experiences and health management strategies might shape the development of and access to high-quality survivorship care for Canadians with cancer. Using a nursing epistemological approach informed by critical and intersectional perspectives, we conducted a three-phased Interpretive Description study. We engaged in critical textual analysis of documentary sources, a secondary analysis of interview transcripts from an existing database, and qualitative interviews with 34 survivors and 12 system stakeholders. On the basis of these data, we identified individual, group, and system factors that contributed to gaps between survivors' expected and actual survivorship care experiences. By understanding what shapes survivorship care systems and resources, we help illuminate and unravel the complex nature of the issue, supporting clinicians and decision makers to find multi-layered approaches for equitably high-quality survivorship care.
尽管癌症生存护理模式正在迅速发展,但越来越多的证据表明癌症幸存者之间存在健康差异。在当前背景下,加拿大的生存护理系统使一些人而非其他人有特权接受高质量护理并优化其健康结果。本研究的目的是通过帮助临床医生和决策者更好地理解各种社会心理/政治因素、幸存者的健康经历和健康管理策略如何可能影响加拿大癌症患者获得高质量生存护理的发展和机会,来改善生存护理系统。我们采用了一种受批判性和交叉性视角启发的护理认识论方法,进行了一个分三个阶段的解释性描述研究。我们对文献资料进行了批判性文本分析,对现有数据库中的访谈记录进行了二次分析,并对34名幸存者和12名系统利益相关者进行了定性访谈。基于这些数据,我们确定了导致幸存者预期和实际生存护理经历之间差距的个人、群体和系统因素。通过了解影响生存护理系统和资源的因素,我们有助于阐明并揭示该问题的复杂性,支持临床医生和决策者找到实现公平高质量生存护理的多层次方法。