Bloomberg Faculty of Nursing, University of Toronto, Toronto, Canada.
Canadian Partnership Against Cancer, Toronto, Canada.
Support Care Cancer. 2019 Aug;27(8):2977-2986. doi: 10.1007/s00520-018-4605-3. Epub 2018 Dec 26.
To understand the experiences of adult cancer survivors as they transition from the end of cancer treatment to follow-up care as a basis for developing actionable recommendations to integrate cancer care delivery and survivorship care.
A national survey was conducted in collaboration with ten Canadian provinces to identify unmet needs and experiences with follow-up for cancer survivors between 1 and 3 years post-treatment. Surveys were available in English and French and completed either on paper or on-line. Samples were drawn from provincial cancer registries and packages distributed by mail.
A total of 40,790 survey packages were mailed out across the ten provinces and 12,929 surveys were completed by adults (age 30+ years), and 329 surveys were completed by adolescents and young adults (age 18 to 29 years) giving an overall response rate of 33.3%. For the purposes of this publication, the focus will be on the adult sample. In the adult cohort (age 30+ years), 51% of the sample were females, 60% were 65 years of age or older, and 77% had not experienced metastatic spread. Three-quarters reported their health as good/very good and 82% that their quality of life was good/very good. Overall, 87% experienced at least one physical concern, 78% experienced at least one emotional concern, and 44% experienced at least one practical concern. The average number of concerns reported for each domain ranged from 2.0 to 3.8. For those who sought help, a third experienced difficulty obtaining assistance or did not receive it. The most frequently cited reasons for not seeking help was that someone had told them what they were experiencing was normal.
The results indicate that many adult survivors have concerns about physical, emotional, and practical issues but are not receiving help to reduce their suffering. It is imperative we take action to correct this current reality.
了解癌症成年幸存者在结束癌症治疗后过渡到随访护理的经历，以此为基础制定切实可行的建议，以整合癌症治疗和生存护理。
与加拿大十个省份合作开展了一项全国性调查，以确定癌症幸存者在治疗结束后 1 至 3 年内的随访中存在的未满足需求和体验。调查提供了英语和法语两种版本，可以通过纸质或在线方式完成。样本来自省级癌症登记处和通过邮件分发的调查包。
在这十个省份共寄出了 40790 个调查包，有 12929 名成年人（年龄 30 岁以上）完成了调查，329 名青少年和年轻成年人（年龄 18 至 29 岁）完成了调查，总体回应率为 33.3%。为了本次发表的目的，重点将放在成年样本上。在成年队列（年龄 30 岁以上）中，51%的样本为女性，60%的年龄在 65 岁或以上，77%的人没有经历过转移扩散。三分之二的人报告自己的健康状况良好/非常好，82%的人报告自己的生活质量良好/非常好。总体而言，75%的人经历过至少一种身体问题，78%的人经历过至少一种情绪问题，44%的人经历过至少一种实际问题。每个领域报告的平均问题数量从 2.0 到 3.8 不等。对于那些寻求帮助的人，三分之一的人表示在获得帮助方面遇到困难或未得到帮助。他们最常提到的不寻求帮助的原因是有人告诉他们所经历的事情是正常的。
结果表明，许多成年幸存者对身体、情绪和实际问题存在担忧，但没有得到帮助来减轻他们的痛苦。我们必须采取行动纠正这一现状。
