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家长参与自闭症儿童心理教育方案的观点。

Facilitators' perspectives on a psychoeducational program for parents of an autistic child.

机构信息

Université de Paris, France.

Université Paris-Est Créteil, France.

出版信息

Autism. 2020 Jul;24(5):1273-1285. doi: 10.1177/1362361319899766. Epub 2020 Jan 22.

Abstract

The recent increase of diagnosed cases of autism spectrum disorders has led to a considerable rise in the demands for autism-related services and interventions. Caring for an autistic child can be perceived as an enrichment, which coexists with stress in parents. Parents express the need to access relevant information about their child's difference, and parent support interventions appear to respond effectively to this demand, as they are knowledge-focused and offer indirect support to the child. The aim of this study was to capture the subjective experience of facilitators who implemented a psychoeducational program called . This program is based on the acknowledged fact that parents of autistic children play a central role in their child's development. Its main goal is to help parents of autistic children under the age of 8 to identify, develop, and update their parenting competences. This program broaches different topics: (1) specific features of an autistic child, (2) post-diagnostic parental adjustment, (3) communication and social relationships, (4) importance of providing the child with a structured environment, and (5) parental emotions and perceptions that impact everyday life. Structured interviews of the facilitators provided insight on institutional support, issues related to the program itself, required and/or recommended professional background, personal experience and competences, and difficulties linked to recruitment and research criteria. Recommendations aiming to enhance program implementation and delivery were then created using facilitators' feedback on these aspects.

摘要

近年来,自闭症谱系障碍的确诊病例有所增加,这导致对自闭症相关服务和干预的需求大幅增加。照顾自闭症儿童可以被视为一种丰富的体验,同时也伴随着父母的压力。父母表示需要获取有关孩子差异的相关信息,而家长支持干预似乎有效地满足了这一需求,因为它们以知识为重点,并为孩子提供间接支持。本研究旨在捕捉实施名为 的心理教育计划的促进者的主观体验。该计划基于这样一个事实,即自闭症儿童的父母在孩子的发展中起着核心作用。其主要目标是帮助 8 岁以下自闭症儿童的父母识别、发展和更新他们的育儿能力。该计划涉及不同的主题:(1)自闭症儿童的特定特征,(2)诊断后父母的调整,(3)沟通和社交关系,(4)为孩子提供结构化环境的重要性,以及(5)影响日常生活的父母情绪和认知。对促进者进行的结构化访谈提供了有关机构支持、与该计划本身相关的问题、所需和/或推荐的专业背景、个人经验和能力、以及与招募和研究标准相关的困难的见解。然后,根据促进者对这些方面的反馈,制定了旨在增强计划实施和交付的建议。

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