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巴西针对自闭症幼儿的家长介导社交沟通疗法的可接受性与可行性:一项关于儿童自闭症沟通疗法的定性实施研究

Acceptability and feasibility of a parent-mediated social-communication therapy for young autistic children in Brazil: A qualitative implementation study of Paediatric Autism Communication Therapy.

作者信息

Brandi Gomes Godoy Priscilla, McWilliams Lorna, Rodrigues da Silveira Leticia, de Cesaro Revers Biasão Mirian, Speggiorin Pereira Alarcão Fernanda, Seda Leonardo, Generoso Campoli Renata, Liang Holan, Divan Gauri, Leadbitter Kathy, Green Jonathan, Shephard Elizabeth

机构信息

Universidade de São Paulo, Brazil.

The University of Manchester, UK.

出版信息

Autism. 2024 Jan;28(1):123-137. doi: 10.1177/13623613221144501. Epub 2023 Jan 1.

Abstract

Parents of autistic children and health professionals who work with autistic children in Brazil had positive views about introducing Paediatric Autism Communication Therapy as a therapy for autistic children in Brazil. The parents and clinicians also mentioned some difficulties about using Paediatric Autism Communication Therapy in Brazil. We made adaptations to Paediatric Autism Communication Therapy to address these difficulties. Paediatric Autism Communication Therapy is a therapy to support the development of social and communication skills for autistic children aged 2-10 years. The therapy is conducted with the autistic child's parent. Paediatric Autism Communication Therapy has not been used in Brazil before. There are few therapy options available for autistic children in Brazil and we believed that Paediatric Autism Communication Therapy may be useful. We asked three groups of people in Brazil about their views of Paediatric Autism Communication Therapy, after explaining how the therapy works. Group 1 included 18 parents of autistic children aged 2-10 years. Group 2 included 20 health professionals such as psychologists who work with autistic children. Group 3 included 15 parents of autistic children aged 2-7 years who received the Paediatric Autism Communication Therapy. We learned that parents and clinicians felt that Paediatric Autism Communication Therapy would be a beneficial therapy for autistic children in Brazil. We also found out about the challenges of using Paediatric Autism Communication Therapy in Brazil. We used these findings to make small cultural adaptations to Paediatric Autism Communication Therapy to make it more suitable for Brazil.

摘要

在巴西,自闭症儿童的家长以及与自闭症儿童打交道的健康专业人士对引入儿童自闭症沟通疗法作为巴西自闭症儿童的一种治疗方法持积极看法。家长和临床医生也提到了在巴西使用儿童自闭症沟通疗法存在的一些困难。我们对儿童自闭症沟通疗法进行了调整以应对这些困难。儿童自闭症沟通疗法是一种支持2至10岁自闭症儿童社交和沟通技能发展的疗法。该疗法由自闭症儿童的家长参与实施。儿童自闭症沟通疗法此前在巴西尚未使用过。巴西可供自闭症儿童选择的治疗方法很少,我们认为儿童自闭症沟通疗法可能会有用。在解释了该疗法的工作原理后,我们询问了巴西三组人群对儿童自闭症沟通疗法的看法。第一组包括18名2至10岁自闭症儿童的家长。第二组包括20名与自闭症儿童打交道的健康专业人士,如心理学家。第三组包括15名接受过儿童自闭症沟通疗法的2至7岁自闭症儿童的家长。我们了解到家长和临床医生认为儿童自闭症沟通疗法对巴西的自闭症儿童将是一种有益的治疗方法。我们还发现了在巴西使用儿童自闭症沟通疗法面临的挑战。我们利用这些发现对儿童自闭症沟通疗法进行了一些小的文化调整,使其更适合巴西的情况。

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