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支持痴呆症患者的效果:一项针对二人组的研究。

Effects of supporting patients with dementia: A study with dyads.

机构信息

Departamento de Psicologia, Centro de Investigação em Psicologia, Universidade Autónoma de Lisboa, Lisboa, Portugal.

Centro de Psicologia, Universidade do Porto, Porto, Portugal.

出版信息

Perspect Psychiatr Care. 2020 Jul;56(3):614-620. doi: 10.1111/ppc.12476. Epub 2020 Jan 22.

DOI:10.1111/ppc.12476
PMID:31970779
Abstract

PURPOSE

This study aimed to examine the factors associated with the development of higher burden in informal caregivers of patients with dementia, using dyadic data.

DESIGN AND METHODS

Seventy-two dyads of patients with dementia and their informal caregivers were assessed, the former in terms of behavioral-psychological symptoms and autonomy, the latter in terms of burden and individual needs.

FINDINGS

Caregivers at risk for developing higher burden are those who are female, whose care recipient present psychiatric symptoms and lower autonomy, and those who recognize the need for more information/support.

PRACTICE IMPLICATIONS

Interventions should offer caregivers the tools to provide care, maintaining their psychological well-being. Interventions should target not only common aspects of caregiver burden but also the specificities of caring for a person with dementia.

摘要

目的

本研究旨在使用对偶数据检查与痴呆患者的非专业照护者的负担加重相关的因素。

设计和方法

对 72 对痴呆患者及其非专业照护者进行评估,前者评估行为-心理症状和自主性,后者评估负担和个人需求。

结果

有发展为更高负担风险的照护者是女性,其照护对象有精神症状和较低的自主性,并且认识到需要更多信息/支持的照护者。

实践意义

干预措施应向照护者提供提供照护的工具,同时保持他们的心理幸福感。干预措施不仅应针对照护者负担的常见方面,还应针对照顾痴呆患者的具体情况。

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J Clin Psychol Med Settings. 2025 Jun;32(2):325-335. doi: 10.1007/s10880-024-10052-2. Epub 2024 Oct 25.
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Organizational characteristics of highly specialized units for people with dementia and severe challenging behavior.高度专业化的痴呆症和严重挑战性行为患者单位的组织特点。
BMC Geriatr. 2024 Aug 14;24(1):681. doi: 10.1186/s12877-024-05257-x.
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The impact of caring for family members with mental illnesses on the caregiver: a scoping review.
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Health Promot Int. 2023 Jun 1;38(3). doi: 10.1093/heapro/daac049.
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Lived experiences of informal caregivers of people with chronic musculoskeletal pain: a systematic review and meta-ethnography.慢性肌肉骨骼疼痛患者非正式照料者的生活经历:一项系统评价与元民族志研究
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Trajectory of Psychosocial Measures amongst Informal Caregivers: Case-Controlled Study of 1375 Informal Caregivers from the English Longitudinal Study of Ageing.非正式照料者心理社会指标的轨迹:来自英国老龄化纵向研究的1375名非正式照料者的病例对照研究
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