Smith Toby, Fletcher Jessica, Lister Sarah
Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Oxford, UK.
Faculty of Medicine and Health Sciences, University of East Anglia, Norwich, UK.
Br J Pain. 2021 May;15(2):187-198. doi: 10.1177/2049463720925110. Epub 2020 May 30.
People with chronic pain often seek support from friends and family for everyday tasks. These individuals are termed informal caregivers. There remains uncertainty regarding the lived experiences of these people who care for individuals with chronic musculoskeletal pain. The aim of this article is to synthase the evidence on the lived experiences of informal caregivers providing care to people with chronic musculoskeletal pain.
A systematic literature review was undertaken of published and unpublished literature databases including EMBASE, MEDLINE, CINAHL, PubMed, the WHO International Clinical Trial Registry and ClinicalTrials.gov registry (to September 2019). Qualitative studies exploring the lived experiences of informal caregivers of people with chronic musculoskeletal pain were included. Data were synthesised using a meta-ethnography approach. Evidence was evaluated using the Critical Appraisal Skills Programme qualitative appraisal tool.
From 534 citations, 10 studies were eligible (360 participants: 171 informal caregivers of 189 care recipients). The evidence was moderate quality. Seven themes arose: the relationship of caregivers to healthcare professionals; role reversal with care recipients; acting the confidant to the care recipient; a constant burden in caregiving; legitimising care recipient's condition; knowledge and skills to provide caregiving; and the perception of other family members and wider society to the caregiver/care recipient dyad.
The lived experiences of caregivers of people with chronic musculoskeletal pain is complex and dynamic. There is an inter-connected relationship between caregivers, care recipients and healthcare professionals. Exploring how these experiences can be modified to improve a caregiving dyad's lived experience is now warranted.
患有慢性疼痛的人在日常活动中常常寻求朋友和家人的支持。这些人被称为非正式照顾者。对于这些照顾慢性肌肉骨骼疼痛患者的人的生活经历，仍存在不确定性。本文旨在综合关于为慢性肌肉骨骼疼痛患者提供照顾的非正式照顾者生活经历的证据。
对已发表和未发表的文献数据库进行系统的文献综述，包括EMBASE、MEDLINE、CINAHL、PubMed、世界卫生组织国际临床试验注册库和ClinicalTrials.gov注册库（截至2019年9月）。纳入探索慢性肌肉骨骼疼痛患者非正式照顾者生活经历的定性研究。使用元民族志方法对数据进行综合。使用批判性评估技能计划定性评估工具对证据进行评估。
从534条引用文献中，有10项研究符合条件（360名参与者：189名受照顾者的171名非正式照顾者）。证据质量中等。出现了七个主题：照顾者与医疗保健专业人员的关系；与受照顾者角色的逆转；成为受照顾者的知己；照顾负担持续存在；使受照顾者的病情合理化；提供照顾的知识和技能；以及其他家庭成员和更广泛社会对照顾者/受照顾者二元组的看法。
慢性肌肉骨骼疼痛患者照顾者的生活经历复杂且动态。照顾者、受照顾者和医疗保健专业人员之间存在相互关联的关系。现在有必要探索如何改变这些经历以改善照顾二元组的生活体验。
