Health Professions Research and Development Unit, IRCCS Policlinico San Danato, San Donato Milanese, Lombardia, Italy.
Health Professions Research and Development Unit, IRCCS Policlinico San Danato, San Donato Milanese, Lombardia, Italy
BMJ Open. 2020 Jan 23;10(1):e034588. doi: 10.1136/bmjopen-2019-034588.
This study explored the lived experiences of women with congenital heart disease (CHD) during pregnancy and early motherhood.
Qualitative study using semistructured interviews. Data were analysed according to interpretative phenomenological analysis.
San Donato Milanese, Italy.
12 adult women during pregnancy or early motherhood.
Three main themes emerged from the analysis that were labelled as follows: 'Being a woman with CHD'; 'Being a mother with CHD'; and 'Don't be alone'. Mothers described both positive and negative feelings about their pregnancies and transitions from childless women to mothers with CHD. They needed supportive care to improve the management of their health during pregnancy and early motherhood.
This study explored the lived experiences of women with CHD during pregnancy and early motherhood. The emerged themes represent an initial framework for implementing theory-grounded educational and supportive strategies that improve self-care, engagement and quality of life for women with CHD. Furthermore, the study's results provide guidance for operationalising the described experiences into items and domains for future cross-national surveys.
本研究探讨了先天性心脏病（CHD）女性在妊娠和早期母亲身份期间的生活体验。
使用半结构式访谈的定性研究。根据解释现象学分析对数据进行分析。
意大利圣多纳托-米兰内塞。
12 名妊娠或早期母亲身份的成年女性。
分析产生了三个主题，分别标记为：“作为一名患有 CHD 的女性”；“作为一名患有 CHD 的母亲”；和“不要孤单”。母亲们描述了她们对怀孕和从无子女的女性到患有 CHD 的母亲的身份转变的积极和消极感受。她们需要支持性护理，以改善妊娠和早期母亲身份期间的健康管理。
本研究探讨了患有 CHD 的女性在妊娠和早期母亲身份期间的生活体验。出现的主题代表了实施基于理论的教育和支持策略的初始框架，以改善患有 CHD 的女性的自我护理、参与和生活质量。此外，该研究的结果为将描述的经验转化为未来跨国调查的项目和领域提供了指导。
