Department of Nursing, Hsinchu Mackay Memorial Hospital, No. 690, Sec. 2, Guangfu Rd., East Dist., Hsinchu City, Hsinchu 300044, Taiwan.
Institute of Community Health Care, College of Nursing, National Yang Ming Chiao Tung University, No. 155, Sec. 2, Linong Street, Taipei 112304, Taiwan.
J Pediatr Nurs. 2024 Sep-Oct;78:e417-e423. doi: 10.1016/j.pedn.2024.08.003. Epub 2024 Aug 9.
Parenting resilience is essential for the well-being and development of children with chronic illnesses. Given the importance of parenting resilience in this context, this study explored the nature of parenting resilience among mothers caring for adolescents with congenital heart disease (CHD).
We adopted Husserl's phenomenological approach and conducted semistructured in-depth interviews. In addition, we conducted purposive sampling at the pediatric cardiology outpatient departments of 2 medical centers in Taiwan to recruit 11 mothers of adolescents with CHD; all of these adolescents had received open-heart surgery. Furthermore, we analyzed data by using Colaizzi's approach, and we adhered to the COnsolidated criteria for REporting Qualitative research checklist.
Mothers caring for adolescents with CHD was a dynamic process involving problem solving. The 11 mothers in this study employed resilience to remain strong, provided a sense of normalcy for their children, and approached challenges calmly and bravely. We uncovered three major themes among these mothers: "providing support for the child, "facing challenges with equanimity," and "overcoming adversity through positivity and gratitude."
The present results provide a deeper understanding of how mothers caring for adolescents with CHD can cultivate resilience.
The study's findings can inform transitional programs for adolescents with CHD and their families, with nursing professionals supporting mothers' resilience.
养育韧性对于患有慢性疾病的儿童的福祉和发展至关重要。鉴于养育韧性在这种情况下的重要性，本研究探讨了照顾患有先天性心脏病（CHD）的青少年的母亲的养育韧性的本质。
我们采用了胡塞尔的现象学方法，并进行了半结构化的深入访谈。此外，我们在台湾的 2 家医疗中心的儿科心脏病门诊进行了目的性抽样，招募了 11 名患有 CHD 的青少年的母亲；所有这些青少年都接受过心脏直视手术。此外，我们采用了 Colaizzi 的方法对数据进行分析，并遵循了 COnsolidated criteria for REporting Qualitative research 清单。
照顾患有 CHD 的青少年的母亲是一个涉及解决问题的动态过程。本研究中的 11 位母亲运用韧性保持坚强，为孩子提供正常感，并冷静勇敢地面对挑战。我们从这些母亲身上发现了三个主要主题：“为孩子提供支持”、“平静地面对挑战”和“通过积极和感恩克服逆境”。
目前的结果提供了对照顾患有 CHD 的青少年的母亲如何培养韧性的更深入的理解。
该研究的结果可以为患有 CHD 的青少年及其家庭的过渡计划提供信息，护理专业人员可以支持母亲的韧性。
