Swiss Children's Rehab, University Children's Hospital Zurich, Affoltern am Albis, Switzerland.
Children's Research Center, University Children's Hospital of Zurich, University of Zurich, Zurich, Switzerland.
Dev Med Child Neurol. 2020 Apr;62(4):483-488. doi: 10.1111/dmcn.14471. Epub 2020 Jan 26.
To develop a detailed priority list of family-centred rehabilitation goals on the activity level within the International Classification of Functioning, Disability and Health (ICF) chapters d4 'Mobility' and d5 'Self-care' in a paediatric population with a broad range of health conditions.
Twenty-two months after implementing a systematic, family-centred, goal-setting process, the rehabilitation goals of 212 inpatients were retrospectively allocated to the most detailed level of ICF categories by two independent researchers. The overall frequencies of these goals were calculated and stratified by health condition, functional independence, and age.
Ninety-three females and 119 males were included in the study (mean age 10y 9mo, SD 4y 5mo, range 2y 1mo-21y 5mo). The five most frequent rehabilitation goals were ICF codes d4500 'Walking short distances' (11%), d4200 'Transferring oneself while sitting' (9%), d5400 'Putting on clothes' (7%), d451 'Going up and down stairs' (6%), and d4153 'Maintaining a sitting position' (5%). These top goals varied in the subgroups with regard to the underlying health condition, functional independence, and age.
The findings of this study are not generalizable due to the large heterogeneity in priorities. However, they can be used to incorporate families' needs into future research designs and the development of new technologies.
Walking short distances is the most frequent mobility/self-care goal of paediatric rehabilitation. The top goals depend on health condition, functional independence, and age. Priorities vary considerably between children undergoing rehabilitation. Rehabilitation goals need to be assessed individually for each child.
在国际功能、残疾和健康分类（ICF）活动章节 d4“移动”和 d5“自理”中，为患有各种健康状况的儿科人群制定以家庭为中心的康复目标的详细优先顺序表。
在实施系统的、以家庭为中心的目标设定过程 22 个月后，由两名独立研究人员将 212 名住院患者的康复目标追溯分配到 ICF 类别最详细的级别。计算这些目标的总体频率，并按健康状况、功能独立性和年龄进行分层。
本研究纳入 93 名女性和 119 名男性（平均年龄 10 岁 9 个月，标准差 4 岁 5 个月，范围 2 岁 1 个月至 21 岁 5 个月）。最常见的五个康复目标是 ICF 代码 d4500“短距离行走”（11%）、d4200“坐时转移自己”（9%）、d5400“穿衣”（7%）、d451“上下楼梯”（6%）和 d4153“保持坐姿”（5%）。这些顶级目标在基础健康状况、功能独立性和年龄的亚组中有所不同。
由于优先级的高度异质性，本研究的结果不具有普遍性。但是，它们可以用于将家庭的需求纳入未来的研究设计和新技术的开发中。
短距离行走是儿科康复中最常见的移动/自理目标。顶级目标取决于健康状况、功能独立性和年龄。接受康复的儿童之间的优先级差异很大。需要为每个孩子单独评估康复目标。
