Department of Medicine, Public Health Sciences and Humanities, Penn State Milton S. Hershey Medical Center, Penn State College of Medicine, Hershey, PA.
Department of Sociology, Loyola University Maryland, Baltimore, MD, USA.
Diabet Med. 2020 Mar;37(3):493-503. doi: 10.1111/dme.14255.
To review the published qualitative literature on the lived experience of people with diabetes, describe the emerging findings and research methods over the last 25 years, and make recommendations for future research.
We describe a 'Next-Generation' mixed-method approach to reporting qualitative data that combines the advantages of traditional qualitative analysis (assessing depth of meaning from participants themselves) with those of descriptive analysis (assessing breadth and representativeness). We used our Next-Generation approach to conduct a secondary analysis of qualitative data derived from a systematic search of PubMed. A formal coding scheme was developed and systematically applied to 2050 respondent quotations contained in the 74 selected articles; inter-rater agreement was high (κ = 0.90). Quotations were aggregated at the level of the article and reported to assess both narratives and numerical counts of the data.
The rate of qualitative research on the lived experience of diabetes has increased over the last 25 years. Both positive and negative aspects of lived experience were reported, although the former was less common. Data from many different populations were reported, but most studies emphasized breadth of coverage over depth. Some findings are well established and there is little benefit to repeating these studies. Best practices of qualitative methodology were often not utilized.
The amount of qualitative research in diabetes is substantial and increasing. We recommend that future research be focused on specific understudied topics rather than repeating existing research. We also provide recommendations for how qualitative study methodology can be improved by implementing the Next-Generation approach.
回顾过去 25 年来发表的关于糖尿病患者生活体验的定性文献，描述新出现的发现和研究方法，并为未来的研究提出建议。
我们描述了一种“下一代”混合方法报告定性数据的方法，该方法结合了传统定性分析（从参与者自身评估意义的深度）和描述性分析（评估广度和代表性）的优势。我们使用下一代方法对来自 PubMed 系统检索的定性数据进行二次分析。制定了一个正式的编码方案，并系统地应用于 74 篇选定文章中包含的 2050 条受访者引语；评分者间一致性很高（κ=0.90）。引语在文章层面上进行了汇总，并报告了对数据的叙述和数值计数的评估。
过去 25 年来，关于糖尿病患者生活体验的定性研究的数量有所增加。报告了生活体验的积极和消极方面，但前者较少。报告了来自许多不同人群的数据，但大多数研究强调覆盖面的广度而不是深度。一些发现已经得到证实，重复这些研究没有什么好处。定性方法的最佳实践往往没有得到利用。
糖尿病领域的定性研究数量相当多且呈上升趋势。我们建议未来的研究集中在特定的研究不足的主题上，而不是重复现有的研究。我们还为如何通过实施下一代方法来改进定性研究方法提供了建议。
