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探戈对帕金森病患者身体体验的感知影响(一项针对患者及其伴侣的定性研究)。

Perceived effects of Tango Argentino on body experience in persons with Parkinson's disease (PD)-A qualitative study with affected persons and their partners.

机构信息

Professorship Quality of Life, Spirituality and Coping, Faculty of Health, Witten/Herdecke University, Germany.

Department of Psychology and Psychotherapy, Faculty of Health, Witten/Herdecke University, Germany.

出版信息

Complement Ther Med. 2020 Jan;48:102221. doi: 10.1016/j.ctim.2019.102221. Epub 2019 Nov 26.

DOI:10.1016/j.ctim.2019.102221
PMID:31987239
Abstract

BACKGROUND

Persons with Parkinson's disease (PD) experience somatic and psycho-emotional limitations. As a neurodegenerative disease with increasing motor symptoms, PD changes the body experience. Embodied activities like dancing are beneficial to individuals with PD regarding mobility, balance and body feeling. The objective of this study was to assess the impact of Tango Argentino (TA) on body experience in individuals with PD.

METHODS

This qualitative study was conducted among 12 individuals with PD and their dance partners participating in TA courses for persons with PD and uses semi-standardized interviews. The heterogeneity of the sample was mainly based on the number of TA classes, so that participants were distinguished in participants with 10 h (beginners) and participants with more than 10 h (advanced). Further variance was due to different age groups and duration of disease.

RESULTS

Participants reported change on five categories of body experiences: body awareness, motor symptoms and movement, general feelings, body sensations and disease-related feelings. Participants cited a shift in body awareness and improved stability, walking safety, enhanced mobility and amelioration in gestures and facial expressions. In general, participants described reduced body fatigue, anxiety, shame and frustration and increase in joy, pride, curiosity as well as reinforcement of partnership. With regard to perception, positive and negative feelings, ease, relaxation and increase of inner congruence were reported. The experience of normality and health helped to generate greater acceptance of disease burdens and to develop self-confidence and self-assurance. Dance partners confirmed the perceptions of the dancers with PD.

CONCLUSION

The perceived effects of TA courses may be linked to a positive body awareness and body control which may be related improved motor symptoms, social and everyday life. These perceived effects should be controlled in relation to the long time change in embodied activity and body experience in persons with PD.

摘要

背景

帕金森病(PD)患者会经历躯体和心理情绪方面的限制。作为一种运动症状逐渐加重的神经退行性疾病,PD 改变了身体体验。像探戈这样的具身活动对 PD 患者的移动性、平衡和身体感觉都有益处。本研究的目的是评估阿根廷探戈(TA)对 PD 患者身体体验的影响。

方法

本定性研究纳入了 12 名 PD 患者及其舞伴,他们参加了 PD 患者 TA 课程,并使用半标准化访谈。样本的异质性主要基于 TA 课程的数量,因此参与者分为 10 小时(初学者)和 10 小时以上(高级)两类。此外,不同的年龄组和疾病持续时间也存在差异。

结果

参与者报告了身体体验的五个方面的变化:身体意识、运动症状和运动、一般感觉、身体感觉和与疾病相关的感觉。参与者提到了身体意识的转变,以及稳定性、行走安全性、移动性的提高、姿势和面部表情的改善。总的来说,参与者描述了身体疲劳、焦虑、羞耻和沮丧感的减少,以及喜悦、自豪、好奇心和伴侣关系的增强。在感知方面,报告了积极和消极的感觉、轻松、放松和内在一致性的增加。对正常和健康的体验有助于患者更好地接受疾病负担,并增强自信。舞伴们也证实了 PD 舞者的感受。

结论

TA 课程的感知效果可能与积极的身体意识和身体控制有关,这可能与运动症状的改善、社交和日常生活有关。这些感知效果应该与 PD 患者具身活动和身体体验的长期变化相联系。

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