Department of Occupational and Recreational Therapies, University of Utah, Salt Lake City, UT, USA.
A. J. Drexel Autism Institute, Drexel University, Philadelphia, PA, USA.
Disabil Rehabil. 2021 Oct;43(20):2829-2837. doi: 10.1080/09638288.2020.1718779. Epub 2020 Jan 28.
Expectations held by parents of youth with disabilities contribute to decision making and planning for adulthood. This study investigated longitudinal stability of parent expectations about the transition to adulthood for youth with disabilities (i.e., likelihood of obtaining postsecondary education, living independently, becoming financially self-sufficient) and how the stability of parent expectations was related to adult outcomes.
Participants were parents of 3640 youth who participated in the National Longitudinal Transition Study-2 (NLTS2) waves 1 and 2 and had available data related to parent expectations.
Parent expectations were moderately correlated across waves; however, over one-third of parents changed their expectations across waves, including directional shifts (e.g., changing from thinking they probably will achieve the outcome to probably will not achieve it). Directional shifts in parent expectations between waves 1 and 2 significantly predicted young adult outcomes at wave 5. The children of parents who demonstrated uncertainty, as indicated by directional expectation shifts, were less likely live independently as young adults. Family involvement in the transition process is critical and should continue to be advocated for in both policy and practice. Improved supports may be warranted for families who experience uncertainty.Implications for rehabilitationPractitioners should recognize that parents of youth with disabilities have expectations for their child's transition to adulthood that may change over time and are influenced by factors such as youth age, disability classification, gender, and socioeconomic status.The ways parents' expectations change over time may have lasting implications for their child; specifically, we identified that youth of parents who change their expectations negatively (by shifting to expect less independence) are less likely to attain certain adult milestones.Parents experiencing uncertainty about their youths' postsecondary potential may require additional support and resources to understand their child's strengths and challenges, consider available services, and ultimately to promote more independent outcomes for the youth.
残疾青年父母的期望会影响其成年后的决策和规划。本研究调查了残疾青年向成年过渡时期父母期望(即接受高等教育、独立生活、经济自立的可能性)的纵向稳定性,以及父母期望的稳定性与成年结果的关系。
参与者是参加国家纵向过渡研究-2 (NLTS2)第 1 波和第 2 波的 3640 名青年及其父母,且父母的数据与期望相关。
父母的期望在各波之间呈中度相关;然而,超过三分之一的父母在各波之间改变了期望,包括方向变化(例如,从认为他们可能会达到该结果变为可能不会达到)。第 1 波和第 2 波之间父母期望的方向变化显著预测了第 5 波的青年成年结果。父母表现出不确定性(表现为期望方向变化)的孩子在成年后更不可能独立生活。家庭参与过渡过程至关重要,在政策和实践中都应继续倡导。对于经历不确定性的家庭,可能需要提供更好的支持。
从业者应认识到残疾青年的父母对其子女成年过渡有期望,这些期望可能会随时间而变化,并受到青年年龄、残疾分类、性别和社会经济地位等因素的影响。父母期望随时间变化的方式可能对其子女产生持久影响;具体来说,我们发现父母改变期望(期望子女更独立)的负面方式的孩子不太可能达到某些成年里程碑。对子女接受高等教育的潜力感到不确定的父母可能需要额外的支持和资源来了解子女的优势和挑战,考虑可用的服务,并最终促进子女更独立的结果。