Baker Barbara S, Marshall Jean, Hoffman Caroline J
Breast Cancer Haven, Dowgate Hill House, 14-16 Dowgate Hill, London EC4R 2SU, UK.
Breast Cancer Haven, 4-5 The Gateway West, East Street, Leeds LS9 8DA, UK.
Ecancermedicalscience. 2019 Dec 12;13:991. doi: 10.3332/ecancer.2019.991. eCollection 2019.
It has been estimated that there are 36,000 women living with secondary breast cancer in the UK. Many feel isolated and unsupported, their information needs unmet and unaware of available support services such as palliative care or support groups that could help to improve their quality of life. To try to address these needs, a monthly support day was established in 2014 by the national UK breast cancer charity Breast Cancer Haven (BCH) at their Yorkshire centre. The support day provides an opportunity for personal introductions and discussion with other people with secondary breast cancer, to obtain information about breast cancer-related topics of their choice, to eat a healthy lunch and to experience a visualisation/relaxation session. To evaluate how helpful this support day was to its participants, they were asked to complete a feedback form at the end of the day. A total of 171 forms were completed from 26 support days during the period February 2014-July 2018. Participants stated that they found the support day helpful, relaxing, informative, supportive and enjoyable. All except two felt it met their needs and expectations and the majority found the length of the day just right. The personal introduction and discussion session were most frequently cited as the most useful part of the day, with the majority of participants ( = 144, 96.7%) rating it as very or moderately helpful. These findings show that the BCH support day, developed to address the needs of people with secondary breast cancer, is a model of survivorship care that can have a positive impact on their lives.
据估计，英国有36000名女性患有继发性乳腺癌。许多人感到孤立无援，她们的信息需求未得到满足，也不知道有诸如姑息治疗或支持小组等可用的支持服务，而这些服务有助于改善她们的生活质量。为了满足这些需求，英国全国性乳腺癌慈善机构“乳腺癌避风港”（BCH）于2014年在其约克郡中心设立了每月一次的支持日。支持日为患者提供了一个机会，让她们能够进行自我介绍，并与其他继发性乳腺癌患者进行交流，获取她们所选的与乳腺癌相关主题的信息，享用一顿健康午餐，并体验一次可视化/放松课程。为了评估这个支持日对参与者有多大帮助，在当天结束时，参与者被要求填写一份反馈表。在2014年2月至2018年7月期间的26个支持日中，共收集到171份反馈表。参与者表示，他们觉得支持日很有帮助、令人放松、信息丰富、有支持作用且很愉快。除两人外，所有人都觉得它满足了自己的需求和期望，大多数人认为当天的时长恰到好处。个人介绍和讨论环节被最频繁地提及为当天最有用的部分，大多数参与者（n = 144，96.7%）将其评为非常有帮助或有一定帮助。这些研究结果表明，为满足继发性乳腺癌患者的需求而设立的BCH支持日是一种生存护理模式，能够对她们的生活产生积极影响。
