Institute of Nursing and Health Research, Ulster University, BT521SA Coleraine, Ireland.
Int J Environ Res Public Health. 2020 Jan 29;17(3):828. doi: 10.3390/ijerph17030828.
This study provides information on beliefs that parents of children with autism hold in Iran. The main focus is on their beliefs about the cause and the way that this condition is explained based on the first signs that made them be concerned for their children.
To attain the aims of this study, 43 parents of children with ASD (27 mothers and 16 fathers) were recruited and interviewed in two sessions in their home. A mixed method approach was used to understand Iranian parents' reaction to receive diagnosis for their children.
Based on findings for the identification, description, and treatment of ASD in Iran, it is argued that since Iranian parents had their special justification regarding their experience with ASD, early child development and interventions must be understood within cultural context. Culturally informed research on ASD is vital to boost awareness of the importance of understanding parental concerns and their need for educational and psychological services in countries in which autism is less known, undiagnosed, misdiagnosed, or even stigmatized. Understanding the difference in ASD meaning across cultures urges stakeholders such as service providers and policymakers to accept and appreciate cultural and individual diversities in the present century.
本研究提供了伊朗自闭症儿童家长所持信念方面的信息。主要重点是他们对病因的看法,以及基于引起他们对孩子担忧的最初迹象来解释这种情况的方式。
为了实现本研究的目的,我们招募了 43 名自闭症儿童的家长(27 名母亲和 16 名父亲),并在他们家中分两次对其进行了访谈。采用混合方法来了解伊朗家长对为其孩子做出诊断的反应。
根据在伊朗对自闭症谱系障碍(ASD)的识别、描述和治疗的发现,可以认为,由于伊朗父母对他们在 ASD 方面的经历有其特殊的解释,因此必须在文化背景下理解幼儿发育和干预措施。在自闭症谱系障碍知识相对较少、未确诊、误诊甚至污名化的国家,开展针对 ASD 的文化知情研究对于提高对理解家长关注及其对教育和心理服务的需求的重要性至关重要。了解跨文化中自闭症谱系障碍意义的差异促使服务提供者和政策制定者等利益相关者在本世纪接受和欣赏文化和个体多样性。