School of Sport & Health Sciences, Faculty of Health & Wellbeing, Brook Building, University of Central Lancashire, Preston, Lancashire, PR1 2HE, United Kingdom.
Centre for Biostatistics, School of Health Sciences, Faculty of Biology, Medicine and Health, Jean McFarlane Building, The University of Manchester, Oxford Road, Manchester, M13 9PL, United Kingdom.
Eur J Oncol Nurs. 2020 Apr;45:101722. doi: 10.1016/j.ejon.2020.101722. Epub 2020 Jan 24.
Alternatives to hospital follow-up (HFU) following treatment for cancer have been advocated. Telephone follow-up (TFU) and patient-initiated follow-up are being implemented but it is unclear if these approaches will meet the preferences and needs of patients. This study aimed to explore the preferences of endometrial cancer patients and their levels of satisfaction with HFU and nurse-led TFU.
A cross-sectional survey design was utilised and a questionnaire was administered to 236 patients who had participated in a randomised controlled trial comparing HFU with TFU for women diagnosed with Stage I endometrial cancer (ENDCAT trial).
211 (89.4%) patients returned the questionnaire; 105 in the TFU group and 106 in the HFU group. The TFU group were more likely to indicate that appointments were on time (p < 0.001) and were more likely to report that their appointments were thorough (p = 0.011). Participants tended to prefer what was familiar to them. Those in the HFU group tended to prefer hospital-based appointments while the TFU group tended to prefer appointments with a clinical nurse specialist, regardless of locality.
To provide patient centred follow-up services we need to ensure that patient preferences are taken into account and understand that patients may come to prefer what they have experienced. Patient initiated approaches may become standard and preferred practice but TFU remains a high-quality alternative to HFU and may provide an effective transition between HFU and patient-initiated approaches.
提倡在癌症治疗后选择替代医院随访（HFU）的方法。目前正在实施电话随访（TFU）和患者发起的随访，但尚不清楚这些方法是否能满足患者的偏好和需求。本研究旨在探讨子宫内膜癌患者的偏好以及他们对 HFU 和护士主导的 TFU 的满意度。
采用横断面调查设计，对 236 名参加比较 I 期子宫内膜癌（ENDCAT 试验）女性 HFU 与 TFU 的随机对照试验的患者进行问卷调查。
211 名（89.4%）患者返回了问卷；TFU 组 105 名，HFU 组 106 名。TFU 组更有可能表示预约准时（p<0.001），并且更有可能报告他们的预约全面（p=0.011）。参与者倾向于选择他们熟悉的方式。HFU 组倾向于选择医院预约，而 TFU 组倾向于选择临床护士专家预约，无论地点如何。
为了提供以患者为中心的随访服务，我们需要考虑到患者的偏好，并了解到患者可能会倾向于他们所经历的方式。患者发起的方法可能成为标准和首选的实践，但 TFU 仍然是 HFU 的高质量替代方法，并且可能是 HFU 和患者发起的方法之间的有效过渡。
