SGUL, London, UK.
Soc Psychiatry Psychiatr Epidemiol. 2020 Jul;55(7):953-964. doi: 10.1007/s00127-019-01826-3. Epub 2020 Feb 3.
Individuals with severe mental health problems are at risk of social exclusion, which may complicate their recovery. Mental health and social care staff have, until now, had no valid or reliable way of assessing their clients' social inclusion. The Social Inclusion Questionnaire User Experience (SInQUE) was developed to address this. It assesses five domains: social integration; productivity; consumption; access to services; and political engagement, in the year prior to first psychiatric admission (T1) and the year prior to interview (T2) from which a total score at each time point can be calculated.
To establish the validity, reliability, and acceptability of the SInQUE in individuals with a broad range of psychiatric diagnoses receiving care from community mental health services and its utility for mental health staff.
Participants were 192 mental health service users with psychosis, personality disorder, or common mental disorder (e.g., depression, anxiety) who completed the SInQUE alongside other validated outcome measures. Test-retest reliability was assessed in a sub-sample of 30 participants and inter-rater reliability was assessed in 11 participants. SInQUE ratings of 28 participants were compared with those of a sibling with no experience of mental illness to account for shared socio-cultural factors. Acceptability and utility of the tool were assessed using completion rates and focus groups with staff.
The SInQUE demonstrated acceptable convergent validity. The total score and the Social Integration domain score were strongly correlated with quality of life, both in the full sample and in the three diagnostic groups. Discriminant validity and test-retest reliability were established across all domains, although the test-retest reliability on scores for the Service Access and Political Engagement domains prior to first admission to hospital (T1) was lower than other domains. Inter-rater reliability was excellent for all domains at T1 and T2.
The component of the SInQUE that assesses current social inclusion has good psychometric properties and can be recommended for use by mental health staff.
患有严重精神健康问题的个体面临社会排斥的风险，这可能使他们的康复复杂化。心理健康和社会护理人员迄今为止还没有有效的或可靠的方法来评估他们的客户的社会包容性。社会包容性问卷用户体验（SInQUE）就是为了解决这个问题而开发的。它评估了五个领域：社会融合；生产力；消费；获得服务；以及在首次入院前一年（T1）和接受采访前一年（T2）的政治参与，每个时间点都可以计算出总分。
确定 SInQUE 在接受社区心理健康服务的各种精神诊断的个体中的有效性、可靠性和可接受性，以及其对心理健康工作人员的实用性。
参与者为 192 名患有精神病、人格障碍或常见精神障碍（如抑郁、焦虑）的精神卫生服务使用者，他们在完成 SInQUE 的同时还完成了其他验证后的结果测量。在 30 名参与者的子样本中评估了测试-重测信度，在 11 名参与者中评估了评分者间信度。对 28 名参与者的 SInQUE 评分与无精神疾病经验的兄弟姐妹的评分进行了比较，以考虑到共同的社会文化因素。使用完成率和工作人员焦点小组评估了工具的可接受性和实用性。
SInQUE 表现出可接受的收敛有效性。总分和社会融合领域的分数与生活质量密切相关，无论是在全样本还是在三个诊断组中。在所有领域都建立了判别有效性和测试-重测信度，尽管在首次入院前（T1）对服务获取和政治参与领域的分数的测试-重测信度低于其他领域。在 T1 和 T2 时，所有领域的评分者间信度都非常好。
评估当前社会包容性的 SInQUE 部分具有良好的心理测量学特性，可推荐供心理健康工作人员使用。
