1University College London, UK.
Int J Soc Psychiatry. 2014 Mar;60(2):148-54. doi: 10.1177/0020764012471918. Epub 2013 Feb 10.
People with mental health problems are known to be socially excluded but the contribution of pre-morbid characteristics, symptoms and needs, and the impact on quality of life is unknown.
To investigate change in social inclusion after the development of a psychotic Illness and factors associated with this.
A cross-sectional community survey of people with psychosis was carried out in three areas of London. Five domains of social inclusion (social integration, consumption, access to services, productivity, political engagement) were assessed prior to the onset of illness and currently using the Social Inclusion Questionnaire User Experience. Quality of life, symptoms and needs were also assessed using standardized measures. Factors associated with change in social inclusion were investigated using multiple regression.
Productivity and social integration among the 67 participants reduced after the onset of psychosis. Older age at onset and longer duration of illness were associated with greater reduction in productivity. Less reduction in social integration was associated with greater quality of life. Participants reported barriers to social inclusion that were directly related to symptoms of their illness, low confidence and poor self-esteem.
A greater focus on interventions that can facilitate the occupation and the social networks of people with psychosis is required. Interventions that tackle 'self-stigma' may also prove useful in mitigating the social exclusion experienced by people with psychosis.
众所周知,心理健康问题患者会被社会排斥,但发病前的特征、症状和需求以及对生活质量的影响尚不清楚。
调查精神疾病发病后社会包容状况的变化及其相关因素。
在伦敦的三个地区进行了一项针对精神疾病患者的横断面社区调查。在发病前和目前使用社会包容问卷用户体验评估了社会包容的五个领域(社会融合、消费、获得服务、生产力、政治参与)。使用标准化措施评估生活质量、症状和需求。使用多元回归分析调查与社会包容变化相关的因素。
67 名参与者的生产力和社会融合在精神病发作后下降。发病年龄较大和病程较长与生产力下降幅度更大有关。社会融合减少较少与生活质量较高有关。参与者报告了与他们的疾病症状、自信心低和自尊心差直接相关的社会包容障碍。
需要更加关注可以促进精神疾病患者职业和社交网络的干预措施。解决“自我污名化”的干预措施也可能有助于减轻精神疾病患者所经历的社会排斥。