• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

[Health-related quality of life: Exclusion of subjectivity].

作者信息

Lopera-Vásquez Juan Pablo

机构信息

Unidad de Neuropsicología, Instituto Neurológico de Colombia. Cl. 55 ##46-36. Medellín Antioquia, Colômbia.

出版信息

Cien Saude Colet. 2020 Feb;25(2):693-702. doi: 10.1590/1413-81232020252.16382017. Epub 2018 May 24.

DOI:10.1590/1413-81232020252.16382017
PMID:32022209
Abstract

Quality of life is a concept increasingly being used to assess the impact of chronic illnesses and the effectiveness of medical treatment options. The approach in the field of health is usually conducted using self-administered surveys, given the current high cost of instrumentalization of clinical practice. These instruments are useful for health professionals enabling them to analyze the effect of their interventions. Likewise, they are also relevant to public health, as they report on conditions of those with illnesses whose prevalence is increasing. Nevertheless, in this article, it is proposed that the quality of life approach is limited when it is carried out with structured instruments. It particularly reflects on how these instruments lack subjectivity, despite the fact that they are self-administered by patients. The limitations relating to quantification and transversality that arise when evaluating quality of life with these parameters are also analyzed. As an alternative to overcome these shortcomings, the narrative approach is proposed, as it makes it possible to report on changes experienced in subjectivity with the ongoing progress of the illness.

摘要

相似文献

1
[Health-related quality of life: Exclusion of subjectivity].
Cien Saude Colet. 2020 Feb;25(2):693-702. doi: 10.1590/1413-81232020252.16382017. Epub 2018 May 24.
2
[Psychometric characteristics of questionnaires designed to assess the knowledge, perceptions and practices of health care professionals with regards to alcoholic patients].[旨在评估医护人员对酒精依赖患者的知识、认知及实践情况的调查问卷的心理测量学特征]
Encephale. 2004 Sep-Oct;30(5):437-46. doi: 10.1016/s0013-7006(04)95458-9.
3
A systematic review of dimensions evaluating patient experience in chronic illness.维度评估慢性病患者体验的系统评价。
Health Qual Life Outcomes. 2019 Jan 21;17(1):19. doi: 10.1186/s12955-019-1084-2.
4
5
A concept analysis of health-related quality of life in young people with chronic illness.慢性病青少年健康相关生活质量的概念分析
J Clin Nurs. 2008 Jul;17(14):1823-33. doi: 10.1111/j.1365-2702.2008.02379.x.
6
Estimating health needs: the impact of a checklist of conditions and quality of life measurement on health information derived from community surveys.评估健康需求:疾病清单和生活质量测量对社区调查所得健康信息的影响。
J Public Health Med. 2001 Sep;23(3):179-86. doi: 10.1093/pubmed/23.3.179.
7
Development of disease-specific health-related quality-of-life instruments for children with immune thrombocytopenic purpura and their parents.针对免疫性血小板减少性紫癜患儿及其父母开发特定疾病的健康相关生活质量量表。
J Pediatr Hematol Oncol. 2003 Jan;25(1):56-62. doi: 10.1097/00043426-200301000-00011.
8
Chronic illness and family: impact of schizophrenia and Crohn's disease on the family quality of life.慢性病与家庭:精神分裂症和克罗恩病对家庭生活质量的影响。
Psychiatr Danub. 2012 Dec;24(4):359-66.
9
The effectiveness of internet-based e-learning on clinician behavior and patient outcomes: a systematic review protocol.基于互联网的电子学习对临床医生行为和患者结局的有效性:一项系统评价方案。
JBI Database System Rev Implement Rep. 2015 Jan;13(1):52-64. doi: 10.11124/jbisrir-2015-1919.
10
[Quality of life of persons with chronic illness].[慢性病患者的生活质量]
Rev Lat Am Enfermagem. 1996 Dec;4(3):5-18. doi: 10.1590/s0104-11691996000300002.

引用本文的文献

1
Impact of Acquired Brain Injury on Quality of Life.获得性脑损伤对生活质量的影响。
Ann Neurosci. 2024 Sep 16:09727531241263670. doi: 10.1177/09727531241263670.
2
Quality of Life Assessment in Patients Using Benzodiazepines during the COVID-19 Pandemic in a Community Pharmacy Using EuroQol 5D-3L.在社区药房使用欧洲五维健康量表(EuroQol 5D-3L)对新冠疫情期间使用苯二氮䓬类药物的患者进行生活质量评估。
Pharmacy (Basel). 2023 Jan 18;11(1):19. doi: 10.3390/pharmacy11010019.