College of Graduate Health Science, University of Tennessee Health Science Center, 910 Madison, Suite 317, Memphis, TN 38163, USA.
Loewenberg College of Nursing, University of Memphis, 3567 Community Health Building, Memphis, TN 38152, USA.
Int J Environ Res Public Health. 2020 Feb 11;17(4):1126. doi: 10.3390/ijerph17041126.
This qualitative descriptive research study looks at the services that community-based breast cancer support agencies provide to underserved and African American women who are at risk for or diagnosed with breast cancer in Memphis, Tennessee. We seek their understanding of breast cancer mortality disparities in Memphis. Data were collected using semi-structured in-depth focus groups with five breast cancer support agencies. Categories and patterns were established using thematic analysis and a deductive template of codes. Thematic analysis is a method for identifying, analyzing, and reporting themes within the data. The main themes identified within support agencies for African American women with breast cancer who live in Memphis were barriers to the use of services, education, health system support, and emotional support. Numerous sub themes included cost of medications, support group supplemental programming, eligibility for mobile services, patient/provider communication, optimism about the future, and family advice. Procrastinating, seeking second options, fearfulness, insurance, childcare, and transportation were barriers to care. Community-based breast cancer support agencies play a critical role as connectors for women with breast cancer who live in medically underserved areas and must find their way within a fragmented medical care system.
本定性描述性研究着眼于田纳西州孟菲斯市为服务不足和非裔美国乳腺癌高危或确诊女性提供的社区乳腺癌支持机构的服务。我们试图了解孟菲斯乳腺癌死亡率差异的原因。数据收集使用了与五家乳腺癌支持机构的半结构式深入焦点小组。类别和模式使用主题分析和代码的演绎模板建立。主题分析是一种在数据中识别、分析和报告主题的方法。在为居住在孟菲斯的非裔美国乳腺癌女性提供的支持机构中确定的主要主题包括使用服务、教育、医疗系统支持和情感支持方面的障碍。众多次要主题包括药物成本、支持小组补充计划、移动服务的资格、医患沟通、对未来的乐观态度和家庭建议。拖延、寻求第二选择、恐惧、保险、儿童保育和交通都是护理障碍。社区乳腺癌支持机构在为居住在医疗服务不足地区的乳腺癌女性提供服务方面发挥着至关重要的作用，这些女性必须在支离破碎的医疗保健系统中找到自己的出路。
