The University of Sydney, School of Public Health, Sydney Health Ethics, Level 1, Building 1, Medical Foundation Building, NSW, 2006, Australia.
The University of Sydney Law School, Law School Building (F10) Eastern Avenue, Camperdown Campus, NSW, 2006, Australia.
J Bioeth Inq. 2020 Mar;17(1):87-94. doi: 10.1007/s11673-020-09962-1. Epub 2020 Feb 14.
Consumer engagement in decisions about the funding of medicines is often framed as a good in and of itself and as an activity that should be universally encouraged. A common justification for calls for consumer engagement is that it enhances equity. In this paper we systematically critique this assumption. We show that consumer engagement may undermine equity as well as enhance it and show that a simple relationship cannot be assumed but must be justified and demonstrated. In concluding, we present a number of challenges that need to be overcome in order for consumer engagement to contribute to health technology assessment in a morally and politically sound manner.
消费者参与药品资金决策通常被视为一种本身就很好的事情，并且应该普遍鼓励这种活动。呼吁消费者参与的一个常见理由是，它可以增强公平性。在本文中，我们系统地批判了这一假设。我们表明，消费者参与既可能损害公平性，也可能增强公平性，并且表明不能简单地假设这种关系，而必须加以证明。最后，我们提出了一些需要克服的挑战，以便消费者参与能够以道德和政治上合理的方式为卫生技术评估做出贡献。
