Walker Rachael C, Tong Allison, Howard Kirsten, Palmer Suetonia C
Eastern Institute of Technology, Hawke's Bay, New Zealand.
Centre for Kidney Research, The Children's Hospital at Westmead, Australia.
Perit Dial Int. 2020 Mar;40(2):202-208. doi: 10.1177/0896860819887638. Epub 2020 Jan 17.
Fear of catastrophic events and uncertainty about safety at home are barriers to choosing peritoneal dialysis (PD). Remote monitoring may address these concerns and is increasingly being used in patients on automated peritoneal dialysis (APD). This study aims to describe clinicians' perspectives and experiences of remote monitoring in caring for patients on PD.
We conducted semi-structured interviews with nephrologists and dialysis nurses across nine dialysis units in New Zealand who had experience using remote monitoring with patients on APD. Interviews were transcribed and analysed using thematic analysis.
Thirteen registered nurses and 12 nephrologists or nephrologists-in-training (total = 25) participated. Four themes were identified: promoting and maintaining PD (providing reassurance to patients through continual surveillance, supporting confidence at home and sustaining PD as the patient-preferred treatment); enabling data-driven decisions (using comprehensive clinical data in providing timely and accessible care, and identifying and supporting patient adherence); establishing boundaries for use (negotiating privacy and independence, clarifying clinician and patient responsibilities and strengthening nursing innovation and capability); and enhancing patient-focused care (developing empathy for patients, enabling self-management and reducing time and financial burden in accessing care).
Remote monitoring is valued by clinicians in promoting and maintaining patients on PD and enabling data-driven decisions. Remote monitoring enhances patient-focused care, but clinicians also emphasise the need to protect patient privacy and establish boundaries for use. Remote monitoring that supports the clinicians' role and adheres to principles of data security maintains patient privacy may enhance care and outcomes for patients on PD.
对灾难性事件的恐惧以及对居家安全的不确定性是选择腹膜透析(PD)的障碍。远程监测可能解决这些问题,并且越来越多地用于接受自动化腹膜透析(APD)的患者。本研究旨在描述临床医生在护理接受腹膜透析患者时对远程监测的看法和经验。
我们对新西兰九个透析单位中具有使用远程监测护理接受APD患者经验的肾病学家和透析护士进行了半结构化访谈。访谈进行了转录,并采用主题分析法进行分析。
13名注册护士和12名肾病学家或实习肾病学家(共25人)参与了研究。确定了四个主题:促进和维持腹膜透析(通过持续监测为患者提供安心感,支持患者在家中的信心并维持腹膜透析作为患者首选的治疗方式);实现数据驱动的决策(利用全面的临床数据提供及时且可获取的护理,并识别和支持患者的依从性);确定使用界限(协商隐私和独立性,明确临床医生和患者的责任并加强护理创新和能力);以及加强以患者为中心的护理(培养对患者的同理心,实现自我管理并减少获得护理的时间和经济负担)。
临床医生重视远程监测在促进和维持腹膜透析患者治疗以及实现数据驱动的决策方面的作用。远程监测加强了以患者为中心的护理,但临床医生也强调需要保护患者隐私并确定使用界限。支持临床医生角色并遵循数据安全原则的远程监测在维护患者隐私的同时,可能会改善腹膜透析患者的护理和治疗效果。