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肾脏病学家对腹膜透析技术生存方面的沟通与决策的看法:一项国际质性访谈研究

Nephrologists' perspectives on communication and decision-making regarding technique survival in peritoneal dialysis: an international qualitative interview study.

作者信息

Yudianto Benedicta, Jaure Allison, Shen Jenny, Cho Yeoungjee, Brown Edwina, Dong Jie, Dunning Tony, Mehrotra Rajnish, Naicker Saraladevi, Pecoits-Filho Roberto, Perl Jeffrey, Wang Angela Yee-Moon, Wilkie Martin, Guha Chandana, Scholes-Robertson Nicole, Craig Jonathan, Johnson David, Manera Karine

机构信息

Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.

Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, NSW, Australia.

出版信息

BMJ Open. 2024 Mar 11;14(3):e082184. doi: 10.1136/bmjopen-2023-082184.

Abstract

OBJECTIVES

Peritoneal dialysis (PD) allows patients increased autonomy and flexibility; however, both infectious and non-infectious complications may lead to technique failure, which shortens treatment longevity. Maintaining patients on PD remains a major challenge for nephrologists. This study aims to describe nephrologists' perspectives on technique survival in PD.

DESIGN

Qualitative semistructured interview study. Transcripts were thematically analysed.

SETTING AND PARTICIPANTS

30 nephrologists across 11 countries including Australia, the USA, the UK, Hong Kong, Canada, Singapore, Japan, New Zealand, Thailand, Colombia and Uruguay were interviewed from April 2017 to November 2019.

RESULTS

We identified four themes: defining patient suitability (confidence in capacity for self-management, ensuring clinical stability and expected resilience), building endurance (facilitating access to practical support, improving mental well-being, optimising quality of care and training to reduce risk of complications), establishing rapport through effective communications (managing expectations to enhance trust, individualising care and harnessing a multidisciplinary approach) and confronting fear and acknowledging barriers to haemodialysis (preventing crash landing to haemodialysis, facing concerns of losing independence and positive framing of haemodialysis).

CONCLUSION

Nephrologists reported that technique survival in PD is influenced by patients' medical circumstances, psychological motivation and positively influenced by the education and support provided by treating clinicians and families. Strategies to enhance patients' knowledge on PD and communication with patients about technique survival in PD are needed to build trust, set patient expectations of treatment and improve the process of transition off PD.

摘要

目的

腹膜透析(PD)可使患者获得更大的自主性和灵活性;然而,感染性和非感染性并发症均可能导致技术失败,从而缩短治疗寿命。让患者持续接受腹膜透析治疗对肾病科医生来说仍是一项重大挑战。本研究旨在描述肾病科医生对腹膜透析技术存活情况的看法。

设计

定性半结构化访谈研究。对访谈记录进行主题分析。

地点和参与者

2017年4月至2019年11月期间,对来自澳大利亚、美国、英国、中国香港、加拿大、新加坡、日本、新西兰、泰国、哥伦比亚和乌拉圭等11个国家的30名肾病科医生进行了访谈。

结果

我们确定了四个主题:确定患者的适用性(对自我管理能力的信心、确保临床稳定性和预期恢复力)、增强耐力(促进获得实际支持、改善心理健康、优化护理质量以及进行培训以降低并发症风险)、通过有效沟通建立融洽关系(管理期望以增强信任、个性化护理以及采用多学科方法)以及直面恐惧并认识到血液透析的障碍(防止突然转为血液透析、面对失去独立性的担忧以及对血液透析进行积极的框架构建)。

结论

肾病科医生报告称,腹膜透析的技术存活情况受患者的医疗状况、心理动机影响,同时也受到治疗医生和家庭提供的教育与支持的积极影响。需要采取策略来增强患者对腹膜透析的了解,并就腹膜透析的技术存活情况与患者进行沟通,以建立信任、设定患者的治疗期望并改善停止腹膜透析的过渡过程。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/733a/10936514/a282d09fd4c4/bmjopen-2023-082184f01.jpg

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