Cox Vincent, Mulder Marijn, Nijland Rinske, Schepers Vera, Van Wegen Erwin, Van Heugten Caroline, Kwakkel Gert, Visser-Meily Johanna
Center of Excellence in Rehabilitation Medicine, UMC Utrecht Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.
Department of Rehabilitation Medicine, Amsterdam University Medical Center, VU University Medical Center, Amsterdam Movement Sciences, Amsterdam, The Netherlands.
Brain Inj. 2020 Mar 20;34(4):489-495. doi: 10.1080/02699052.2020.1725978. Epub 2020 Feb 17.
To investigate the level of agreement and differences regarding the perception of family functioning between patients with acquired brain injury and their partners. Our hypothesis was that patients would report better family functioning than their partners.
Cross-sectional studyMethods and Procedures: Baseline data were used from 77 patient-partner dyads (87.0% stroke) who were participating in the ongoing CARE4Patient and CARE4Carer trials. Family functioning was assessed using the General Functioning subscale of the McMaster Family Assessment Device (FAD-GF). Agreement was assessed with intraclass correlation coefficient, a Bland-Altman plot, percentages absolute agreement and weighted kappa values. Differences were tested with Wilcoxon signed-rank tests.
Patients and their partners differed in their perception of family functioning. Within-dyad agreement was poor regarding the overall FAD-GF scores with partners reporting significantly poorer family functioning compared to the patients (32.5% versus 18.2%). Agreement regarding the individual items ranged from slight to moderate.
Health care professionals should assess family functioning after stroke in both patients and their partners, and any discrepancies should be discussed with both members of the patient-partner dyad.
调查获得性脑损伤患者及其伴侣对家庭功能认知的一致性水平和差异。我们的假设是患者报告的家庭功能状况优于其伴侣。
横断面研究
使用来自77对患者-伴侣二元组（87.0%为中风患者）的基线数据，这些患者和伴侣参与了正在进行的CARE4Patient和CARE4Carer试验。使用麦克马斯特家庭评估工具（FAD）的一般功能分量表（FAD-GF）评估家庭功能。通过组内相关系数、布兰德-奥特曼图、绝对一致百分比和加权kappa值评估一致性。使用威尔科克森符号秩检验来检验差异。
患者及其伴侣对家庭功能的认知存在差异。在FAD-GF总分方面，二元组内的一致性较差，伴侣报告的家庭功能明显比患者差（32.5%对18.2%）。各单项的一致性从中度到轻度不等。
医疗保健专业人员应评估中风患者及其伴侣的家庭功能，任何差异都应与患者-伴侣二元组的双方进行讨论。
