Karpa Jane, Chernomas Wanda, Roger Kerstin, Heinonen Tuula
University of Brandon, Winnipeg, Canada.
College of Nursing, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Canada.
Nurs Res Pract. 2020 Aug 3;2020:8866534. doi: 10.1155/2020/8866534. eCollection 2020.
The objective of this study was to examine families' experiences living with acquired brain injury (ABI) using a research approach that included the affected individual family member and the family together as a family group. A narrative inquiry study, informed by the life-stage approach of Lieblich, Tuval-Mashiach, and Zilber, was used to obtain family stories. Families experiencing an ABI event were purposefully selected from different regions in a western Canadian province. Centered on the life stages of before the ABI event, now living with the ABI, and the future, thematic findings included: Families, a grounding force; Losses, individual and family; Family adaptive capacities; Experiences with the healthcare system-hospital to home; and A patchwork future-entering the unknown. Themes affirmed the significant impacts of ABI on individual and family members and acknowledged ABI as an ambiguous loss event. The findings also illuminated families' strengths and resiliencies in coping with living with ABI. The study results suggest by "" nurses can contribute towards a healthcare model that focuses on "family" as the central unit of care.
本研究的目的是采用一种研究方法来考察家庭在后天性脑损伤（ABI）情况下的生活经历，该方法将受影响的个体家庭成员和整个家庭作为一个家庭群体纳入其中。采用了一项叙事探究研究，该研究以利布利希、图瓦尔-马夏赫和齐尔伯的生命阶段方法为依据，以获取家庭故事。经历过ABI事件的家庭是从加拿大西部一个省份的不同地区有目的地挑选出来的。围绕ABI事件发生之前、现在与ABI共存以及未来的生命阶段，主题性研究结果包括：家庭，一种稳定力量；损失，个人和家庭层面的；家庭适应能力；在医疗系统中的经历——从医院到家庭；以及拼凑的未来——踏入未知。这些主题肯定了ABI对个体和家庭成员的重大影响，并将ABI视为一个模糊的损失事件。研究结果还揭示了家庭在应对与ABI共存方面的优势和复原力。研究结果表明，护士可以为一种以“家庭”作为核心护理单位的医疗模式做出贡献。
