Ludwig Kelsey A, Browne Julia W, Nagendra Arun, Gleeson John F, D'Alfonso Simon, Penn David L, Alvarez-Jimenez Mario
Department of Psychology and Neuroscience, The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina.
Department of Psychiatry, Yale School of Medicine, New Haven, Connecticut.
Early Interv Psychiatry. 2021 Apr;15(2):335-343. doi: 10.1111/eip.12947. Epub 2020 Feb 17.
We evaluated the feasibility and acceptability of Horyzons, an online social media platform designed to facilitate relationship development among, and introduce therapeutic content to, first-episode psychosis (FEP) clients. We also evaluated whether participation in the platform was related to reduced loneliness, improved social integration and increased psychological well-being.
Twenty-six participants diagnosed with a schizophrenia spectrum disorder were provided access to the moderated Horyzons platform for 12 weeks. During the intervention period, participants were encouraged to access therapeutic content and social components embedded within the site. Participants were recruited from three first-episode coordinated specialty care clinics in North Carolina and assessed at four time points: baseline, mid-treatment, post-treatment and 1-month follow-up.
Findings indicated that Horyzons was both feasible and very well tolerated, with a 92.3% retention rate and 79.2% of participants actively engaged in the platform. The most commonly identified personal strengths selected by Horyzons users were creativity (61.5%), curiosity (42.3%) and courage (38.5%). Feedback from participants indicated Horyzons could be improved by the development of a smartphone application, expanding the size of the Horyzons community and facilitating private messages between users. Preliminary results with engaged participants showed the greatest improvements in psychosis-related symptoms, followed by self-reported experience of negative emotions, depressive symptoms and loneliness.
This open trial found that Horyzons is both feasible and acceptable to FEP persons early in the course of illness living in the United States.
我们评估了Horyzons的可行性和可接受性，这是一个在线社交媒体平台，旨在促进首发精神病（FEP）患者之间的关系发展，并向他们介绍治疗内容。我们还评估了参与该平台是否与减少孤独感、改善社会融合以及提高心理健康水平有关。
26名被诊断患有精神分裂症谱系障碍的参与者获得了为期12周的经过审核的Horyzons平台访问权限。在干预期间，鼓励参与者访问该网站内嵌入的治疗内容和社交组件。参与者从北卡罗来纳州的三个首发协调专科护理诊所招募，并在四个时间点进行评估：基线、治疗中期、治疗后和1个月随访。
研究结果表明，Horyzons既可行又耐受性良好，保留率为92.3%，79.2%的参与者积极参与该平台。Horyzons用户最常提及的个人优势是创造力（61.5%）、好奇心（42.3%）和勇气（38.5%）。参与者的反馈表明，开发智能手机应用程序、扩大Horyzons社区规模以及促进用户之间的私人消息传递可以改进Horyzons。参与度较高的参与者的初步结果显示，与精神病相关的症状改善最大，其次是自我报告的负面情绪体验、抑郁症状和孤独感。
这项开放试验发现，Horyzons对于居住在美国、处于疾病早期的FEP患者来说既可行又可接受。
