Ginter Amanda C
Department of Family Studies and Community Development, Towson University, Towson, MD, USA.
J Psychosoc Oncol. 2020 Jul-Aug;38(4):418-434. doi: 10.1080/07347332.2020.1715523. Epub 2020 Feb 18.
The number of young women with metastatic breast cancer (MBC) is growing in the United States. The intersection of age and cancer stage presents unique challenges for this population. However, there is little extant research on the concerns and perspectives of young women with MBC. The purpose of this study is to understand how young women describe their lived experiences following their diagnoses of MBC. A cross-sectional qualitative study with a life course theoretical framework was employed. Purposive sampling yielded nine participants who took part in semi-structured interviews. Phenomenology informed understanding of the lived experience of young women with MBC. The findings describe how young women with MBC measure quality of life, via themes of facing off-time diagnoses, strategizing disclosure, relying on mindfulness and spirituality, contemplating the future, and differentiating surviving from truly living. The notion of short-term or long-term decision-making is clouded by a metastatic prognosis. These findings present new information about the needs of young women with MBC, with potentially transferable implications for young adults with other forms of metastatic cancer.
在美国，患有转移性乳腺癌（MBC）的年轻女性数量正在增加。年龄与癌症阶段的交叉为这一人群带来了独特的挑战。然而，关于患有MBC的年轻女性的担忧和观点，目前现存的研究很少。本研究的目的是了解年轻女性如何描述她们被诊断出患有MBC后的生活经历。采用了一个具有生命历程理论框架的横断面定性研究。目的抽样产生了九名参与半结构化访谈的参与者。现象学有助于理解患有MBC的年轻女性的生活经历。研究结果描述了患有MBC的年轻女性如何通过面对非预期诊断、制定披露策略、依靠正念和灵性、思考未来以及区分生存与真正生活等主题来衡量生活质量。转移性预后使得短期或长期决策的概念变得模糊不清。这些研究结果提供了关于患有MBC的年轻女性需求的新信息，对患有其他形式转移性癌症的年轻人可能具有可借鉴的意义。
