School of Nursing, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK
School of Nursing, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK.
BMJ Open. 2020 Feb 17;10(2):e032172. doi: 10.1136/bmjopen-2019-032172.
To enhance understanding of the bodily and lifestyle effects of ageing with cerebral palsy (CP) for women, with a particular focus on experiences with sexual and reproductive healthcare (SRH) services in the UK and North America.
A qualitative study underpinned by feminist disability theory and drawing on digital ethnographies to capture health and healthcare experiences for women with CP.
A global community of 140 women with CP, who are members of the closed international Facebook group, (WACP).
Forty-five members of WACP who were based in the UK and North America. The women were aged between 21 and 75.
Messages posted on WACP between January 2018 and October 2018 were collated and underwent thematic analysis to identify themes relating to effects of ageing and experiences of SRH for women with CP at different points over the female life course.
The breadth of experiences in relation to the effects of ageing and access to reproductive and sexual healthcare for women with CP can be divided into three themes: (1) bodily effects of ageing; (2) lifestyle effects of ageing; (3) experiences of reproductive and sexual healthcare.
Giving women with CP a platform to 'speak for themselves' in relation to effects of ageing and SRH provides health professionals with an informed knowledge base on which to draw. This might improve treatment for this growing adult patient community whose experiences have not received attention in health discourse or services. Including these experiences in public medical and social discourse can also bring a new knowledge to girls with CP about what ageing could mean for them so plans can be put in place for their future.
增强对脑瘫（CP）女性身体和生活方式衰老影响的理解，特别关注英国和北美的性和生殖保健（SRH）服务体验。
一项定性研究，以女性残疾理论为基础，并利用数字民族志来捕捉 CP 女性的健康和医疗保健体验。
一个由 140 名 CP 女性组成的全球社区，她们是封闭的国际 Facebook 群组（WACP）的成员。
WACP 的 45 名成员，她们来自英国和北美。这些女性的年龄在 21 岁至 75 岁之间。
收集 2018 年 1 月至 10 月期间 WACP 上发布的信息，并进行主题分析，以确定与女性 CP 生命周期不同阶段的衰老影响和 SRH 体验相关的主题。
与 CP 女性衰老影响和生殖与性保健获取相关的体验范围广泛，可分为三个主题：（1）身体衰老的影响；（2）生活方式衰老的影响；（3）生殖与性保健的体验。
为 CP 女性提供一个“自我表达”衰老影响和 SRH 的平台，可以为卫生专业人员提供一个可供借鉴的知情知识库。这可能会改善针对这个不断增长的成年患者群体的治疗，因为他们的体验在健康话语或服务中没有得到关注。将这些体验纳入公共医疗和社会话语中，也可以为 CP 女孩带来关于衰老对她们意味着什么的新知识，以便为她们的未来做好计划。
