Bell Brian G, Shah Sonali, Coulson Neil, McLaughlin Janice, Logan Pip, Luke Richard, Avery Anthony J
School of Medicine, University of Nottingham, Nottingham, UK
School of Medicine, University of Nottingham, Nottingham, UK.
BJGP Open. 2023 Dec 19;7(4). doi: 10.3399/BJGPO.2023.0028. Print 2023 Dec.
Cerebral palsy (CP) is one of the most common neurological disorders in children and results in lifelong physical impairments. Adults with CP have approximately the same life expectancy as their non-disabled peers, so helping them to stay healthy throughout the life course will have long-term cost benefits via reductions in hospital admissions, long-term care, and unemployment rates.
To explore how adults with CP experience ageing.
DESIGN & SETTING: National online survey given to adults with CP in the UK.
The participants were adults with CP. Items for the online survey were taken from existing self-report measures, with additional items developed for the survey. Several domains of functioning were assessed including mobility, dexterity, fatigue, pain, speech, mental health, swallowing and health maintenance/self-care as well as healthcare usage. Data were analysed using χ to examine the relationships between the demographic variables and the survey responses.
The survey was completed by 395 participants, of whom 74.2% were female and approximately 59.3% aged <45 years. Responders reported having problems with mobility, pain, and fatigue with older participants reporting higher levels of pain and more mobility problems, although the correlations were fairly small. Healthcare usage was surprisingly low.
The study found that age was associated with a decline in mobility and a higher level of pain, although the relationships were weak. It is possible that the low healthcare usage among the responders is owing to services not being available to respond to their needs.
脑瘫（CP）是儿童中最常见的神经障碍之一，会导致终身身体损伤。患有脑瘫的成年人预期寿命与非残疾同龄人大致相同，因此帮助他们在整个生命过程中保持健康，通过减少住院、长期护理和失业率，将带来长期的成本效益。
探讨患有脑瘫的成年人如何经历衰老过程。
对英国患有脑瘫的成年人进行全国性在线调查。
参与者为患有脑瘫的成年人。在线调查的项目取自现有的自我报告测量方法，并为该调查开发了其他项目。评估了几个功能领域，包括 mobility（行动能力）、灵活性、疲劳、疼痛、言语、心理健康、吞咽以及健康维护/自我护理以及医疗保健使用情况。使用χ分析数据，以检验人口统计学变量与调查回复之间的关系。
395名参与者完成了调查，其中74.2%为女性，约59.3%年龄小于45岁。受访者报告在行动能力、疼痛和疲劳方面存在问题，年龄较大的参与者报告的疼痛程度更高，行动能力问题更多，尽管相关性相当小。医疗保健使用率出奇地低。
该研究发现年龄与行动能力下降和较高的疼痛水平相关，尽管这种关系较弱。受访者医疗保健使用率低可能是由于没有可用的服务来满足他们的需求。
