University of Nebraska Medical Center and the Fred and Pamela Buffett Cancer Center.
Roswell Park Comprehensive Cancer Center.
Oncol Nurs Forum. 2020 Mar 1;47(2):165-176. doi: 10.1188/20.ONF.165-176.
To explore the experiences and needs of African American (AA) children and adolescents who were identified by a cancer survivor in their family as providing substantial supportive care during diagnosis and treatment.
PARTICIPANTS & SETTING: 5 AA young adults who provided care and support to a family member with cancer when they were aged 7-19 years and 4 cancer survivors from a northeastern U.S. city.
Focus groups and interviews were conducted, recorded, transcribed, and analyzed using content analysis until thematic saturation was reached.
Themes focused on AA young supporters' lack of cancer-related information, reduced ability to communicate needs, and challenged views of themselves, relationships, faith, and the future at the time that they provided support.
Nurses can support AA children and adolescents in caregiving roles by assessing their needs and providing information on diagnosis and treatment. In addition, nurses can conduct research on culturally adapted interventions that can better support AA children and adolescents caring for a parent or grandparent with cancer.
探索被癌症幸存者认定为在诊断和治疗期间提供大量支持性护理的美籍非裔（AA）儿童和青少年的经历和需求。
5 名 AA 年轻人，他们在 7-19 岁时为患有癌症的家庭成员提供护理和支持，以及来自美国东北部城市的 4 名癌症幸存者。
采用焦点小组和访谈的方式进行，使用内容分析进行记录、转录和分析，直到达到主题饱和。
主题集中在 AA 年轻支持者缺乏癌症相关信息、沟通需求的能力降低，以及在提供支持时对自己、人际关系、信仰和未来的看法受到挑战。
护士可以通过评估他们的需求并提供有关诊断和治疗的信息，来支持 AA 儿童和青少年在照顾角色中的作用。此外，护士可以开展关于文化适应性干预措施的研究，以更好地支持 AA 儿童和青少年照顾患有癌症的父母或祖父母。
