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1
Medical diagnoses among infants at entry in out-of-home care: A Swedish population-register study.进入家庭外照料机构时婴儿的医学诊断:一项瑞典人口登记研究。
Health Sci Rep. 2019 Jul 18;2(8):e133. doi: 10.1002/hsr2.133. eCollection 2019 Aug.
2
Is the procedure of diagnosing abusive head trauma a purely medical matter?诊断虐待性头部创伤的程序纯粹是医学问题吗?
Pediatr Radiol. 2019 Mar;49(3):422-423. doi: 10.1007/s00247-019-04344-1. Epub 2019 Feb 19.
3
A Qualitative Study Examining Stakeholder Perspectives of a Local Child Abuse Program in Community Emergency Departments.一项定性研究,探讨社区急诊部门中地方虐待儿童项目相关利益方的观点。
Acad Pediatr. 2019 May-Jun;19(4):438-445. doi: 10.1016/j.acap.2019.01.006. Epub 2019 Jan 29.
4
Metabolic bone disease risk factors strongly contributing to long bone and rib fractures during early infancy: A population register study.代谢性骨病危险因素与婴幼儿早期长骨和肋骨骨折密切相关:一项基于人群的研究。
PLoS One. 2018 Dec 19;13(12):e0208033. doi: 10.1371/journal.pone.0208033. eCollection 2018.
5
Learning From Patients' Experiences Related To Diagnostic Errors Is Essential For Progress In Patient Safety.从与诊断错误相关的患者经验中学习对于患者安全的进步至关重要。
Health Aff (Millwood). 2018 Nov;37(11):1821-1827. doi: 10.1377/hlthaff.2018.0698.
6
Epidemiology of subdural haemorrhage during infancy: A population-based register study.婴儿期硬脑膜下血肿的流行病学:基于人群的登记研究。
PLoS One. 2018 Oct 31;13(10):e0206340. doi: 10.1371/journal.pone.0206340. eCollection 2018.
7
Traumatic shaking: The role of the triad in medical investigations of suspected traumatic shaking.创伤性摇晃:三联征在疑似创伤性摇晃的医学调查中的作用。
Acta Paediatr. 2018 Sep;107 Suppl 472(Suppl Suppl 472):3-23. doi: 10.1111/apa.14473.
8
Consensus statement on abusive head trauma in infants and young children.关于婴幼儿虐待性头部创伤的共识声明。
Pediatr Radiol. 2018 Aug;48(8):1048-1065. doi: 10.1007/s00247-018-4149-1. Epub 2018 May 23.
9
Easier to see the speck in your critical peers' eyes than the log in your own? Response to Debelle .比起自己眼中的梁木,更容易看到批评你的同行眼中的 speck ?对德贝勒的回应。 (注:这里“speck”字面意思是“小点、微粒”,结合语境可能是指小缺点之类,“log”指“原木、大木材”,这里用“梁木”来翻译更符合语境,出自《圣经》中“为什么看见你弟兄眼中有刺,却不想自己眼中有梁木呢?”这句话的典故)
Arch Dis Child. 2018 Jul;103(7):714. doi: 10.1136/archdischild-2018-315380. Epub 2018 May 4.
10
Infant abuse diagnosis associated with abusive head trauma criteria: incidence increase due to overdiagnosis?婴儿虐待诊断与虐待性头部创伤标准相关:过度诊断导致发病率增加?
Eur J Public Health. 2018 Aug 1;28(4):641-646. doi: 10.1093/eurpub/cky062.

父母寻求医疗保健和遭遇摇晃婴儿综合征指控的经历:一项定性研究。

Parents' experiences of seeking health care and encountering allegations of shaken baby syndrome: A qualitative study.

机构信息

Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.

Department of Epidemiology and Global Health, Umeå University, Umeå, Sweden.

出版信息

PLoS One. 2020 Feb 20;15(2):e0228911. doi: 10.1371/journal.pone.0228911. eCollection 2020.

DOI:10.1371/journal.pone.0228911
PMID:32078645
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7032704/
Abstract

OBJECTIVES

To explore parents' experiences of seeking health care for their children and instead being accused by healthcare professionals of Shaken Baby Syndrome/Abusive Head Trauma (SBS/AHT), being reported to Social Services, undergoing judiciary processing, and the impact of these events on family (dis)integration.

METHODS

Design: A qualitative study based on qualitative content analysis. Participants: Twelve parents in Sweden, mothers and fathers, seeking health care for their infants, encountering allegations of SBS/AHT, losing custody of their infants, and being subjected to a judiciary process, and finally regaining custody of their children. Data collection: In-depth interviews.

RESULTS

An overarching theme 'Fighting for protection of their child after being trapped by doctors' and four sub-themes were developed to reflect the parents' experiences, reactions and interpretations. The first sub-theme, 'Being accused of injuring the child', illuminated the shock experienced when seeking care and instead being accused of being a perpetrator. The second, 'Chaos and powerlessness', refers to the emotions experienced when losing custody of the child and being caught in the enforcement of legislation by the authorities. The third, ´The unified fight against the doctors' verdict´, illustrates the parents' fight for innocence, their worry for the lost child, and their support and resistance. The fourth, 'The wounded posttraumatic growth', describes the emotions, grief, panic, anxiety, and challenges in reuniting the family, but also the parents' reflections on personal growth. Unanimously, they had experienced the authorities' inability to reconsider, and expressed a deep mistrust of paediatric care.

CONCLUSIONS

Being wrongly accused of child abuse and alleged SBS/AHT evoked emotions of intense stress, but parents endured because of a successful fight to regain custody of their child. However, the trauma had a long-term impact on their lives with residual posttraumatic stress symptoms and mistrust towards healthcare services and the authorities. The results provide important inferences for restoring system failures within child protection services.

摘要

目的

探讨父母在为子女寻求医疗保健时,却被医疗保健专业人员指责为摇晃婴儿综合征/虐待性头部外伤(SBS/AHT),被转介到社会服务机构,接受司法处理,以及这些事件对家庭(解体)的影响。

方法

设计:基于定性内容分析的定性研究。参与者:瑞典的 12 名父母,母亲和父亲,为他们的婴儿寻求医疗保健,遭遇 SBS/AHT 的指控,失去对婴儿的监护权,并接受司法程序,最终重新获得对孩子的监护权。数据收集:深入访谈。

结果

一个总体主题是“在被医生困住后为保护孩子而奋斗”,并提出了四个子主题来反映父母的经历、反应和解释。第一个子主题是“被指控伤害孩子”,描绘了在寻求医疗保健时感到震惊,而不是被指控为肇事者。第二个主题是“混乱和无力”,指的是失去对孩子的监护权以及被当局执行立法所困的情绪。第三个主题是“团结一致地反对医生的判决”,说明了父母为清白而战,对失去的孩子的担忧,以及他们的支持和抵制。第四个主题是“创伤后的创伤后成长”,描述了重新团聚家庭的情绪、悲伤、恐慌、焦虑和挑战,但也反映了父母对个人成长的反思。他们一致表示,当局没有能力重新考虑,对儿科护理表示深深的不信任。

结论

被错误地指控虐待儿童和涉嫌 SBS/AHT 引起了强烈的压力情绪,但父母为了成功夺回对孩子的监护权而坚持下来。然而,创伤对他们的生活产生了长期影响,留下了创伤后应激症状和对医疗保健服务和当局的不信任。这些结果为恢复儿童保护服务系统中的失败提供了重要的推断。