Centre for Children's Burns and Trauma Research, Child Health Research Centre, The University of Queensland, Level 7, 62 Graham Street, South Brisbane, Queensland, 4101, Australia.
Gold Coast University Hospital, Social Work Department, 1 Hospital Boulevard, Southport, Queensland, 4217, Australia.
Body Image. 2020 Jun;33:13-26. doi: 10.1016/j.bodyim.2020.02.004. Epub 2020 Feb 19.
Living with a visible difference (e.g., disfigurement) can compromise a child's psychological wellbeing. Although some children can adjust well, others can develop a range of appearance-related issues such as social anxiety, low self-esteem, and body dissatisfaction. However, current research fails to confirm what factors contribute to appearance-related distress, and what factors buffer the consequences of living with a visible difference. Semi-structured qualitative interviews were conducted with 16 Australian specialist health professionals who care for children with visible differences. Interviews explored the type of appearance-related psychosocial concerns presented to a pediatric hospital, perspectives on the impact of appearance-related distress, as well as factors and processes that health professionals perceive influence adjustment. Data were subjected to inductive thematic analysis. Rich evidence was offered by health professionals, which demonstrated deep understanding of the psychological wellbeing of their patients. Three themes were identified: Mind, Body, and Soul; Stages of Life; and Individual Differences. Findings highlighted the complexity of appearance-related distress, with individual differences in adjustment, and the powerful impact it can have on a child's short and long-term psychosocial wellbeing. The importance of reaching consensus in the conceptualisation and measurement of psychological wellbeing is stressed, and key domains associated with adjustment are proposed.
患有可见缺陷(例如毁容)会影响儿童的心理健康。尽管有些孩子可以很好地适应,但有些孩子会出现一系列与外貌相关的问题,如社交焦虑、自卑和身体不满。然而,目前的研究无法确定是什么因素导致与外貌相关的困扰,以及是什么因素缓冲了患有可见缺陷的后果。对 16 名澳大利亚专门照顾有可见缺陷儿童的健康专家进行了半结构化定性访谈。访谈探讨了向儿科医院提出的与外貌相关的心理社会问题的类型、对外貌相关困扰的影响的看法,以及健康专业人员认为影响调整的因素和过程。对数据进行了归纳主题分析。健康专家提供了丰富的证据,展示了他们对患者心理健康的深刻理解。确定了三个主题:身心和灵魂;生命阶段;和个体差异。研究结果强调了与外貌相关的困扰的复杂性,以及调整方面的个体差异,以及它对外貌相关的困扰对儿童短期和长期心理社会健康的强大影响。强调了在心理健康概念化和测量方面达成共识的重要性,并提出了与调整相关的关键领域。