Office of the National Coordinator for Health Information Technology, U.S. Department of Health and Human Services, Washington, DC, USA.
J Am Med Inform Assoc. 2020 Apr 1;27(4):652-657. doi: 10.1093/jamia/ocaa008.
The growth of digitized health data presents exciting opportunities to leverage the health information technology (IT) infrastructure for advancing biomedical and health services research. However, challenges impede use of those resources effectively and at scale to improve outcomes. The Office of the National Coordinator for Health Information Technology (ONC) led a collaborative effort to identify challenges, priorities, and actions to leverage health IT and electronic health data for research. Specifically, ONC led a review of relevant literature and programs, key informant interviews, and a stakeholder workshop to identify electronic health data and health IT infrastructure gaps. This effort resulted in the National Health IT Priorities for Research: A Policy and Development Agenda, which articulates an optimized health information ecosystem for scientific discovery. This article outlines 9 priorities and recommended actions to be implemented in collaboration with the research and informatics communities for realizing this vision.
数字化健康数据的增长为利用健康信息技术 (IT) 基础设施推进生物医学和健康服务研究带来了令人兴奋的机会。然而,挑战阻碍了这些资源的有效利用和规模化,以改善成果。国家卫生信息技术协调员办公室 (ONC) 领导了一项合作努力,以确定利用健康 IT 和电子健康数据进行研究的挑战、优先事项和行动。具体来说,ONC 领导了对相关文献和计划、关键信息提供者访谈以及利益相关者研讨会的审查,以确定电子健康数据和健康 IT 基础设施的差距。这项工作促成了《国家卫生信息技术研究优先事项:政策和发展议程》,该议程阐述了一个优化的健康信息生态系统,以促进科学发现。本文概述了 9 项优先事项和建议行动,这些行动将与研究和信息学社区合作实施,以实现这一愿景。