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配偶在照顾晚年体弱的伴侣时的存在性孤独——一种诠释学方法。

Spouses' existential loneliness when caring for a frail partner late in life - a hermeneutical approach.

机构信息

Faculty of Health and Society, Department of Care Science, Malmö University, Malmö, Sweden.

Faculty of Health Sciences, Kristianstad University, Kristianstad, Sweden.

出版信息

Int J Qual Stud Health Well-being. 2020 Dec;15(1):1734166. doi: 10.1080/17482631.2020.1734166.

DOI:10.1080/17482631.2020.1734166
PMID:32116141
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7067191/
Abstract

: Spouses are in a vulnerable situation when caring for a frail partner late in life. Exploring their existential loneliness can be a way to understand more about their existential needs.: A hermeneutic approach was used. Multistage focus group interviews were conducted with two groups consisting of five spouses, respectively, who met three times each. To work with the text, an approach was adapted where quotations are converted into poems in a linguistic manner.: Existential loneliness can be understood as the following: 1) being in a transition from to merely , 2) being forced to make decisions and feeling excluded, 3) navigating in an unfamiliar situation and questioning oneself, and 4) longing for togetherness but lacking the energy to encounter other people. The main interpretation is that existential loneliness emerges when one is in moments of inner struggle, when one is forced to make impossible choices, when one is approaching and is in limit situations, and when one is experiencing the endless loss of the other.: For health care professionals to achieve a holistic picture, person-centeredness can be a way to make the spouses' existential needs visible and to provide support based on their needs.

摘要

当配偶在生命晚期照顾虚弱的伴侣时,他们处于脆弱的境地。探索他们的存在孤独感可以帮助我们更好地理解他们的存在需求。本研究采用解释学方法,对两组各由五名配偶组成的参与者进行了多阶段焦点小组访谈,每组分别进行了三次访谈。为了处理文本,我们采用了一种方法,即将引语以语言的方式转化为诗歌。存在孤独感可以理解为以下几个方面:1)从到仅仅是;2)被迫做出决定并感到被排斥;3)在陌生的环境中导航并自我质疑;4)渴望团聚但缺乏与他人相遇的精力。主要的解释是,当一个人处于内心挣扎的时刻、被迫做出不可能的选择、接近和处于极限情况、以及经历无尽的失去对方时,存在孤独感就会出现。为了实现整体护理,以人为本可以使配偶的存在需求变得明显,并根据他们的需求提供支持。

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本文引用的文献

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Exploring Existential Loneliness Among Frail Older People as a Basis for an Intervention: Protocol for the Development Phase of the LONE Study.探索体弱老年人的存在性孤独作为干预基础:孤独研究(LONE Study)发展阶段的方案
JMIR Res Protoc. 2019 Aug 14;8(8):e13607. doi: 10.2196/13607.
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Struggling for a dignifying care: experiences of being next of kin to patients in home health care.为尊严护理而抗争:家庭医疗中患者近亲的经历
Scand J Caring Sci. 2019 Jun;33(2):409-416. doi: 10.1111/scs.12638. Epub 2019 Jan 3.
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Encountering existential loneliness among older people: perspectives of health care professionals.
在童年和成年的交界地带深感孤独——青少年讲述的存在孤独体验。
Int J Qual Stud Health Well-being. 2022 Dec;17(1):2132653. doi: 10.1080/17482631.2022.2132653.
老年人中的存在性孤独:医护人员的观点
Int J Qual Stud Health Well-being. 2018 Dec;13(1):1474673. doi: 10.1080/17482631.2018.1474673.
4
Existential loneliness: An attempt at an analysis of the concept and the phenomenon.存在孤独:对概念和现象的分析尝试。
Nurs Ethics. 2019 Aug;26(5):1310-1325. doi: 10.1177/0969733017748480. Epub 2018 Feb 22.
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Being disconnected from life: meanings of existential loneliness as narrated by frail older people.与生活脱节:体弱老年人所讲述的存在性孤独的意义。
Aging Ment Health. 2018 Oct;22(10):1357-1364. doi: 10.1080/13607863.2017.1348481. Epub 2017 Jul 17.
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Older persons' existential loneliness, as interpreted by their significant others - an interview study.重要他人所诠释的老年人的生存性孤独——一项访谈研究
BMC Geriatr. 2017 Jul 10;17(1):138. doi: 10.1186/s12877-017-0533-1.
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The oldest carers: A narrative review and synthesis of the experiences of carers aged over 75 years.最年长的照料者:对75岁以上照料者经历的叙述性综述与综合分析
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Palliat Med. 2015 Jun;29(6):496-507. doi: 10.1177/0269216314566840. Epub 2015 Jan 29.
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