a Department of Health Sciences , Mid Sweden University , Östersund , Sweden.
Aging Ment Health. 2014 Mar;18(2):152-60. doi: 10.1080/13607863.2013.818100. Epub 2013 Jul 22.
The aim was to describe the existential life situations of spouses who care for persons with dementia, before and after relocation to nursing homes.
This was a qualitative study among 11 spouses of persons with dementia, recruited via purposeful sampling. Data were collected through interviews and analysed with interpretive content analysis.
Before the relocation to nursing homes, the spouses' existential life situations were characterized by feelings of shame and guilt, being isolated in the home. Spouses were also exposed to psychological threats, physical violence, and had feelings of placing one's own needs last. After the relocation, spouses described feelings of guilt and freedom, living with grief and thoughts of death, feelings of loneliness in the spousal relationship, and striving for acceptance despite a lack of completion.
The existential life situation of spouses of persons with dementia is about being in limit situations which changes when the ill person relocates to a nursing home. This is important knowledge for health care staff to bear in mind at nursing homes when encountering spouses.
描述痴呆患者配偶在搬入养老院前后的存在生活状况。
这是一项针对 11 名痴呆症患者配偶的定性研究，通过目的性抽样招募。通过访谈收集数据，并采用解释性内容分析进行分析。
在搬入养老院之前，配偶的存在生活状况的特点是感到羞耻和内疚，在家中感到孤立。配偶还面临心理威胁、身体暴力，并感到将自己的需求放在最后。搬迁后，配偶描述了内疚和自由的感觉，生活在悲痛和死亡的想法中，夫妻关系中的孤独感，以及在缺乏完成感的情况下努力被接受。
痴呆症患者配偶的存在生活状况是处于极限状态，当患者搬入养老院时会发生变化。这是养老院医护人员在遇到配偶时需要牢记的重要知识。
