Inserm U1219 Bordeaux Population Health Center, Université de Bordeaux, 33076, Bordeaux, France.
Service de Gériatrie, CHU de Pointe-à-Pitre, Université des Antilles, Pointe-a-Pitre, Guadeloupe, France.
BMC Geriatr. 2020 Mar 6;20(1):92. doi: 10.1186/s12877-020-1434-2.
In 2015 in France, 585,560 people were nursing home residents. A large body of studies has identified predictors of poor quality of life and poor adaptation in institution, mostly for residents without dementia. With 42 to 72% of these residents diagnosed with dementia, it is crucial to identify what factors prior to admission might have an impact on quality of life once the admission is finalized, in order to target specific domains of intervention, while the person still lives at home and after his/her admission.
QOL-EHPAD is a prospective, multi-centred, observational cohort study. At baseline, we will collect retrospective data on the life of 150 persons with dementia and their caregivers. These data will refer to the conditions of admission to a nursing home (emergency admission, involvement in the decision, admission from home or from the hospital) and to the 6 months prior to the admission of the person with dementia: sociodemographic and medical data, psychological tests, information on quality of life, satisfaction, behaviour, and nutrition. Similar data about life in the nursing home will be collected after 6 months, along with information on adaptation of the person with dementia to his/her new living environment. We will use univariate regression analyses followed by stepwise linear regression models to identify which factors pertaining to life at home are associated with quality of life and adaptation after 6 months.
This study will provide data on the impact of institutionalization on quality of life and the determinants of a successful institutionalization in people with dementia. This could be helpful in setting up targeted interventions to prepare admission into a nursing home before the actual admission and to accompany both the caregiver and the person with dementia throughout this process.
2015 年在法国，有 585560 人居住在养老院。大量研究已经确定了生活质量差和机构适应不良的预测因素，这些研究主要针对没有痴呆症的居民。这些居民中有 42%至 72%被诊断患有痴呆症，因此，在入住之前确定哪些因素可能会对入住后的生活质量产生影响至关重要，以便针对特定的干预领域，而患者仍在家中并在入住后进行干预。
QOL-EHPAD 是一项前瞻性、多中心、观察性队列研究。在基线时，我们将收集 150 名痴呆症患者及其照顾者的生活回顾性数据。这些数据将涉及入住养老院的条件（紧急入住、参与决策、从家中或医院入住）以及患者入住前的 6 个月：社会人口学和医学数据、心理测试、生活质量、满意度、行为和营养信息。在患者入住后 6 个月，我们将收集类似的关于养老院生活的数据，以及患者适应新居住环境的信息。我们将使用单变量回归分析，然后是逐步线性回归模型，以确定与 6 个月后生活质量和适应相关的家庭生活因素。
这项研究将提供关于机构化对生活质量的影响以及痴呆症患者成功机构化的决定因素的数据。这有助于在实际入住之前制定有针对性的干预措施，为入住养老院做准备，并在整个过程中为照顾者和患者提供支持。
