[儿童囊性纤维化管理中的一项重要工具]

[An essential tool in the management of cystic fibrosis in childhood].

作者信息

Pierre-Joseph Marlène Clairicia, Lustre Aline

机构信息

CRCM pédiatrie, hôpital universitaire Necker-Enfants malades, 149, rue de Sèvres, 75015 Paris, France.

出版信息

Rev Infirm. 2020 Jan;69(257):20-22. doi: 10.1016/j.revinf.2019.12.009. Epub 2019 Dec 26.

DOI:10.1016/j.revinf.2019.12.009

PMID:32146958

Abstract

The follow-up of a patient with cystic fibrosis requires specific skills. The implementation of a comprehensive management approach gives convincing results in terms of survivability and quality of life. This is why the Cystic Fibrosis Resource and Competence Centres (CRCMs) bring together multidisciplinary teams in which nurse coordinators play a key role with patients, relatives and other healthcare professionals.

摘要

对囊性纤维化患者的随访需要特定技能。实施全面的管理方法在生存率和生活质量方面能取得令人信服的结果。这就是为什么囊性纤维化资源与能力中心（CRCMs）汇聚了多学科团队，其中护士协调员在与患者、家属及其他医疗专业人员的沟通中发挥着关键作用。