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不值得同情的病人?对患者对自身健康状况责任的评估。

The Undeserving Sick? An Evaluation of Patients' Responsibility for Their Health Condition.

作者信息

Clavien Christine, Hurst Samia

出版信息

Camb Q Healthc Ethics. 2020 Apr;29(2):175-191. doi: 10.1017/S0963180119000975.

DOI:10.1017/S0963180119000975
PMID:32159486
Abstract

The recent increased prevalence of diseases related to unhealthy lifestyles raises difficulties for healthcare insurance systems traditionally based on the principles of risk-management, solidarity, and selective altruism: since these diseases are, to some extent, predictable and avoidable, patients seem to bear some responsibility for their condition and may not deserve full access to social medical services. Here, we investigate with objective criteria to what extent it is warranted to hold patients responsible for their illness and to sanction them accordingly. We ground our analysis on a series of minimal conditions for 'practical' and for 'moral' responsibility attribution. By applying these criteria consistently, we highlight that individual responsibility applies to risk-taking life choices rather than stigmatized sickness. We explain that responsibility is a matter of degree, that it varies across life-history, and can be affected by factors beyond the patients' grasp. We point out that scientific knowledge about the effect of these factors generates responsibilities for other parties such as public health agencies and private industry. The upshot of our analysis is that health policies targeting the 'liable' undeserving sick are mostly unwarranted, and tend to increase unequal treatment of already vulnerable groups: the unlucky sick.

摘要

近期,与不健康生活方式相关的疾病患病率上升,这给传统上基于风险管理、团结和选择性利他主义原则的医疗保险系统带来了困难:由于这些疾病在一定程度上是可预测和可避免的,患者似乎应对自己的病情承担一定责任,可能不应完全享有社会医疗服务。在此,我们用客观标准研究让患者对自己的疾病负责并相应地对其进行制裁在多大程度上是合理的。我们的分析基于一系列“实际”和“道德”责任归属的最低条件。通过始终如一地应用这些标准,我们强调个人责任适用于冒险的生活选择,而非被污名化的疾病。我们解释说责任是有程度之分的,它在不同的人生历程中有所不同,并且可能受到患者无法掌控的因素影响。我们指出,关于这些因素影响的科学知识给公共卫生机构和私营企业等其他方带来了责任。我们分析的结果是,针对“有责任”的不值得同情的患者的健康政策大多是不合理的,而且往往会加剧对本就脆弱群体(不幸患病者)的不平等对待。

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