Department of Palliative Medicine, Osaka City General Hospital, Osaka City, Osaka, Japan.
Department of Palliative Care, Senri-chuo Hospital, Toyonaka City, Osaka, Japan.
J Pain Symptom Manage. 2020 Aug;60(2):355-361. doi: 10.1016/j.jpainsymman.2020.03.006. Epub 2020 Mar 10.
There has been a growing consensus that parenteral nutrition and hydration is to be forgone in terminally ill patients with cancer. However, it remains unclear what the beliefs and perceptions of parenteral nutrition and hydration by the family members are.
To clarify their beliefs and perceptions and examine the relationships between the factors of family members, their beliefs and perceptions, and their overall satisfaction with the care the patient received at the place of death.
This study was performed as a part of the cross-sectional anonymous nationwide survey of the bereaved family members of patients with cancer in Japan.
In total, 1001 questionnaires were sent, and 610 questionnaires were returned. Among these, 499 were analyzed. Regarding the prevalence of beliefs and perceptions about parenteral nutrition and hydration, when a patient cannot eat enough, parenteral hydration is needed was the highest (87.7%), followed by the opinions of medical staff are important in the issue of parenteral nutrition and hydration, parenteral hydration serves as a substitute for oral hydration, and if I were a patient and could not eat enough, parenteral hydration would be needed (85.1%, 81.0%, and 80.0%, respectively). We extracted two concepts as follows: belief that parenteral nutrition and hydration are beneficial and perceived need for parenteral nutrition and hydration. They were not identified as independent determinants of overall care satisfaction.
This study showed that beliefs and perceptions about parenteral nutrition and hydration were important in the family members in palliative care.
人们越来越认为，对于癌症终末期患者，应停止肠外营养和补液。然而，目前仍不清楚患者家属对肠外营养和补液的信念和看法是什么。
阐明他们的信念和看法，并研究家属的相关因素与其信念和看法之间的关系，以及这些因素与他们对患者临终关怀满意度之间的关系。
本研究是在日本对癌症患者丧亲家属进行的一项横断面、匿名全国性调查的一部分。
共寄出 1001 份问卷，回收 610 份，其中 499 份进行了分析。关于对肠外营养和补液的信念和看法的流行程度，当患者无法进食足够量时，需要肠外补液的观点最高（87.7%），其次是医护人员的意见在肠外营养和补液问题上很重要、肠外补液可替代口服补液以及如果我是患者且无法进食足够量，我会需要肠外补液（85.1%、81.0%和 80.0%）。我们提取了两个概念：认为肠外营养和补液有益的信念和认为需要肠外营养和补液的观念。它们未被确定为整体护理满意度的独立决定因素。
本研究表明，在姑息治疗中，患者家属对肠外营养和补液的信念和看法很重要。
