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男性炎性关节炎患者的父亲经历:初步扎根理论。

Fatherhood Experiences of Men With Inflammatory Arthritis: A Preliminary Grounded Theory.

机构信息

School of Health Professions, Tel Aviv University, Tel Aviv, Israel.

WorkSafeBC, Vancouver, British Columbia, Canada.

出版信息

Arthritis Care Res (Hoboken). 2021 Jun;73(6):885-892. doi: 10.1002/acr.24189.

DOI:10.1002/acr.24189
PMID:32170812
Abstract

OBJECTIVE

Minimal prior research has examined the impact of inflammatory arthritis (IA) on men's perspectives on parenting. We aimed to describe fathering roles and experiences, the effect of IA on parenting activities, and strategies used by fathers with IA to fulfill this role.

METHODS

A grounded theory approach guided data gathering and analysis. Nine men with IA, parenting at least 1 child age <19 years, were recruited through rheumatology practices, therapy clinics, and social media. Each engaged in 1 in-depth personal interview. Transcripts were analyzed using inductive and iterative steps to identify key themes and a preliminary explanatory framework of fathering experiences of men with IA.

RESULTS

All men were married, ages 31-62 years, with 1 to 5 children ages 6 months to 28 years. "Being an involved father" describes participants' perspectives on fulfilling their role as hands-on parents, role models, and financial providers. "Taking ownership" explains how participants managed daily life, comprising 2 subthemes, "taking care of yourself," using strategies like exercise and communicating with loved ones, and "redefining yourself," a process of adapting to reframed identity and lifestyle adjustments. "Accessing support" indicates men who felt well-supported by social networks (most critically their wives), health care providers, and informational and educational resources.

CONCLUSION

This small, grounded theory study offers an enriched understanding of fatherhood experiences of men with IA. When social, practical, and educational supports are in place, these men found parenting joyful and rewarding. Despite task limitations, their perspectives on being involved fathers was unrestricted by arthritis.

摘要

目的

很少有研究探讨炎症性关节炎(IA)对男性育儿观点的影响。我们旨在描述父亲的角色和经历、IA 对育儿活动的影响以及 IA 父亲用来履行这一角色的策略。

方法

一项扎根理论方法指导了数据收集和分析。通过风湿病诊所、治疗诊所和社交媒体招募了 9 名患有 IA 且至少育有 1 名年龄<19 岁子女的男性。每位男性都进行了 1 次深入的个人访谈。使用归纳和迭代步骤分析转录本,以确定关键主题和 IA 男性育儿经历的初步解释框架。

结果

所有男性均已婚,年龄 31-62 岁,有 1 至 5 个 6 个月至 28 岁的子女。“成为一个有责任心的父亲”描述了参与者对履行作为亲力亲为的父母、榜样和经济支柱的角色的看法。“承担责任”解释了参与者如何管理日常生活,包括 2 个子主题,“照顾好自己”,使用锻炼和与亲人沟通等策略,以及“重新定义自己”,即重新调整身份和生活方式的过程。“获得支持”表明,男性感到得到了社交网络(最重要的是他们的妻子)、医疗保健提供者以及信息和教育资源的充分支持。

结论

这项小型扎根理论研究提供了对患有 IA 的男性育儿经历的更深入理解。当社会、实际和教育支持到位时,这些男性发现育儿既快乐又有回报。尽管存在任务限制,但他们对成为有责任心的父亲的看法不受关节炎的限制。

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