Halioua B, Maccari F, Fougerousse A-C, Parier J, Reguiai Z, Taieb C, Esteve E
GEM Resopso, Dermatology Center, Paris, France.
Service de Dermatologie, Hopital d'Instruction des Armees Begin, Saint-Maur-des-Fossés, France.
J Eur Acad Dermatol Venereol. 2020 Sep;34(9):2044-2050. doi: 10.1111/jdv.16270. Epub 2020 Mar 15.
The impact of psoriasis on quality of life (QoL), sexuality and empathy requires better understanding in patient-partner relationships.
To evaluate the influence of psoriasis on partner QoL, presence of sexual dysfunction (SDy) in couples and empathy in partners of psoriasis patients.
A total of 183 adult psoriasis patients and their partners participated in this observational, cross-sectional and non-comparative study. Severity of psoriasis was measured using the Psoriasis Area and Severity Index. Patient QoL was assessed using the Dermatology Life Quality Index and the Short Form-12 (SF12). The impact of psoriasis on partner QoL was measured with the Family Pso and the SF12. Presence of SDy and empathy in partners were assessed using the Family Pso.
Overall, 49.7% of the patients had moderate-to-severe psoriasis. Patient psoriasis severity and patient QoL were correlated with partner psychological distress. The largest QoL impairment was observed in female patients with moderate-to-severe psoriasis. The stronger QoL alteration observed in female psoriasis patients, compared to their partners, was not observed in male psoriasis patients vs. their partners. There was no relationship between partner QoL and patient age and duration of psoriasis. Most patients, but less than half of the partners, reported SDy with age being a being a significantly more important impacting factor than disease severity. Both psoriasis clinical severity and/or a significant impact on QoL were associated factors for SDy in male partners of psoriasis women, but not in female partners of psoriatic men. Reporting empathy was higher among young male partners of psoriasis patients. In both male and female partners, patient psoriasis clinical severity was not associated with empathy.
Psoriasis impact on patient-partner QoL, sexuality and empathy should be considered more thoroughly by dermatologists when formulating treatment plans and making treatment decisions.
银屑病对生活质量（QoL）、性功能和同理心的影响在患者与伴侣的关系中需要得到更好的理解。
评估银屑病对伴侣生活质量、夫妻中性功能障碍（SDy）的存在情况以及银屑病患者伴侣的同理心的影响。
共有183名成年银屑病患者及其伴侣参与了这项观察性、横断面且非对比性研究。使用银屑病面积和严重程度指数来测量银屑病的严重程度。使用皮肤病生活质量指数和简短健康调查问卷12项版（SF12）评估患者的生活质量。用家庭银屑病量表和SF12测量银屑病对伴侣生活质量的影响。使用家庭银屑病量表评估伴侣中性功能障碍的存在情况和同理心。
总体而言，49.7%的患者患有中度至重度银屑病。患者的银屑病严重程度和生活质量与伴侣的心理困扰相关。在患有中度至重度银屑病的女性患者中观察到最大的生活质量损害。与男性银屑病患者及其伴侣相比，女性银屑病患者与其伴侣相比更强的生活质量改变在男性银屑病患者中未观察到。伴侣的生活质量与患者年龄和银屑病病程之间没有关系。大多数患者，但不到一半的伴侣，报告存在性功能障碍，年龄是比疾病严重程度更重要的影响因素。银屑病的临床严重程度和/或对生活质量的显著影响是银屑病女性男性伴侣中性功能障碍的相关因素，但在银屑病男性的女性伴侣中不是。在银屑病患者的年轻男性伴侣中报告同理心的比例更高。在男性和女性伴侣中，患者的银屑病临床严重程度与同理心均无关联。
皮肤科医生在制定治疗计划和做出治疗决策时，应更全面地考虑银屑病对患者与伴侣生活质量、性功能和同理心的影响。
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