• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利：CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法，用中文像聊天一样搜索，搜遍4000万医学文献。AI智能推荐，让科研检索更轻松。

立即免费搜索

文件翻译

保留排版，准确专业，支持PDF/Word/PPT等文件格式，支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述，25分钟生成高质量综述，智能提取关键信息，辅助科研写作。

立即免费体验

相似文献

1
Direct Costs of Epidermolysis Bullosa by Disease Severity.不同疾病严重程度的大疱性表皮松解症的直接成本。
Acta Derm Venereol. 2020 Apr 21;100(8):adv00116. doi: 10.2340/00015555-3456.
2
Cost of hospitalization for care of children with epidermolysis bullosa in the US.美国大疱性表皮松解症患儿的住院护理费用。
J Am Acad Dermatol. 2024 Jul;91(1):122-125. doi: 10.1016/j.jaad.2024.02.046. Epub 2024 Mar 9.
3
Impact of a rare chronic genodermatosis on family daily life: the example of epidermolysis bullosa.一种罕见慢性遗传性皮肤病对家庭日常生活的影响：以大疱性表皮松解症为例。
Br J Dermatol. 2018 Nov;179(5):1177-1178. doi: 10.1111/bjd.16710. Epub 2018 Sep 5.
4
Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in Europe.欧洲大疱性表皮松解症患者的社会/经济成本及与健康相关的生活质量
Eur J Health Econ. 2016 Apr;17 Suppl 1(Suppl 1):31-42. doi: 10.1007/s10198-016-0783-4. Epub 2016 Apr 23.
5
Cost analysis of the Kozak protocol as used in an Ontario hospital in the treatment of children with epidermolysis bullosa.安大略省一家医院采用科扎克方案治疗大疱性表皮松解症患儿的成本分析。
Can Med Assoc J. 1984 Mar 15;130(6):715-7.
6
[Costs of chronic obstructive pulmonary disease in patients treated in ambulatory care in Poland].[波兰门诊治疗的慢性阻塞性肺疾病患者的费用]
Pneumonol Alergol Pol. 2011;79(5):337-42.
7
[Costs of exacerbations of chronic obstructive pulmonary disease in primary and secondary care in 2007--results of multicenter Polish study].[2007年波兰多中心研究中慢性阻塞性肺疾病加重期在初级和二级医疗保健中的费用]
Pol Merkur Lekarski. 2009 Mar;26(153):208-14.
8
Direct and indirect costs for systemic lupus erythematosus in Sweden. A nationwide health economic study based on five defined cohorts.瑞典系统性红斑狼疮的直接和间接成本。一项基于五个明确队列的全国性卫生经济学研究。
Semin Arthritis Rheum. 2016 Jun;45(6):684-90. doi: 10.1016/j.semarthrit.2015.11.013. Epub 2015 Dec 2.
9
Access to wound dressings for patients living with epidermolysis bullosa - an Australian perspective.大疱性表皮松解症患者获得伤口敷料的情况——澳大利亚视角
Int Wound J. 2014 Oct;11(5):505-8. doi: 10.1111/j.1742-481X.2012.01116.x. Epub 2012 Nov 22.
10
Carcinoembryonic antigen: increased plasma levels in recessive epidermolysis bullosa.癌胚抗原：隐性大疱性表皮松解症患者血浆水平升高。
J Invest Dermatol. 1979 May;72(5):262-3. doi: 10.1111/1523-1747.ep12531719.

引用本文的文献

1
Economic burden and health-related quality of life in patients with epidermolysis bullosa in Spain.西班牙大疱性表皮松解症患者的经济负担和健康相关生活质量。
Orphanet J Rare Dis. 2024 Sep 23;19(1):352. doi: 10.1186/s13023-024-03328-1.
2
Costs of UK community care for individuals with recessive dystrophic epidermolysis bullosa: Findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study.英国对隐性营养不良型大疱性表皮松解症患者的社区护理成本：大疱性表皮松解症前瞻性纵向评估研究的结果
Skin Health Dis. 2024 Jan 10;4(1):e314. doi: 10.1002/ski2.314. eCollection 2024 Feb.
3
Understanding the socioeconomic costs of dystrophic epidermolysis bullosa in Europe: a costing and health-related quality of life study.了解欧洲营养不良性大疱性表皮松解症的社会经济成本：一项成本和健康相关生活质量研究。
Orphanet J Rare Dis. 2022 Sep 6;17(1):346. doi: 10.1186/s13023-022-02419-1.
4
Economic Burden of Epidermolysis Bullosa Disease in Iran.伊朗大疱性表皮松解症的经济负担
Med J Islam Repub Iran. 2021 Nov 3;35:146. doi: 10.47176/mjiri.35.146. eCollection 2021.
5
Assessing the quality of life in the families of patients with epidermolysis bullosa: The mothers as main caregivers.评估大疱性表皮松解症患者家庭的生活质量：以母亲作为主要照顾者
Int J Womens Dermatol. 2021 Aug 26;7(5Part B):721-726. doi: 10.1016/j.ijwd.2021.08.007. eCollection 2021 Dec.
6
Impaired Wound Healing, Fibrosis, and Cancer: The Paradigm of Recessive Dystrophic Epidermolysis Bullosa.创伤愈合受损、纤维化和癌症：隐性营养不良性大疱性表皮松解症的范例。
Int J Mol Sci. 2021 May 12;22(10):5104. doi: 10.3390/ijms22105104.
7
A systematic literature review of the disease burden in patients with recessive dystrophic epidermolysis bullosa.隐性营养不良型大疱性表皮松解症患者疾病负担的系统文献回顾。
Orphanet J Rare Dis. 2021 Apr 13;16(1):175. doi: 10.1186/s13023-021-01811-7.

本文引用的文献

1
Pain and quality of life evaluation in patients with localized epidermolysis bullosa simplex.局限性单纯性大疱性表皮松解症患者的疼痛与生活质量评估
Orphanet J Rare Dis. 2017 Jun 28;12(1):119. doi: 10.1186/s13023-017-0666-5.
2
Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in Europe.欧洲大疱性表皮松解症患者的社会/经济成本及与健康相关的生活质量
Eur J Health Econ. 2016 Apr;17 Suppl 1(Suppl 1):31-42. doi: 10.1007/s10198-016-0783-4. Epub 2016 Apr 23.
3
Inherited epidermolysis bullosa: updated recommendations on diagnosis and classification.遗传性大疱性表皮松解症：诊断和分类的更新建议。
J Am Acad Dermatol. 2014 Jun;70(6):1103-26. doi: 10.1016/j.jaad.2014.01.903. Epub 2014 Mar 29.
4
Family burden in epidermolysis bullosa is high independent of disease type/subtype.大疱性表皮松解症患者的家庭负担不论疾病类型/亚型都很高。
Acta Derm Venereol. 2010 Nov;90(6):607-11. doi: 10.2340/00015555-0947.

Direct Costs of Epidermolysis Bullosa by Disease Severity.

作者信息

Flannery Darragh, Doyle Claire, Hickey Sineád, Aherne Fiona, Kennan Avril

机构信息

Department of Economics, Kemmy Business School, University of Limerick, V94 T9PX Limerick, Ireland.

出版信息

Acta Derm Venereol. 2020 Apr 21;100(8):adv00116. doi: 10.2340/00015555-3456.

DOI:10.2340/00015555-3456
PMID:32176311
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9128898/
Abstract
摘要