Department of History of Science, Harvard University, Cambridge, Massachusetts, USA.
Department of Research and Development, Norfolk and Suffolk Foundation Trust, Norfolk, UK.
Int J Eat Disord. 2020 Aug;53(8):1188-1203. doi: 10.1002/eat.23260. Epub 2020 Mar 17.
An extensive literature exists describing treatment interventions and recovery from eating disorders (EDs); however, this body of knowledge is largely symptom-based and from a clinical perspective and thus limited in capturing perspectives and values of individuals with lived experience of an ED. In this study, we performed a systematic review to coproduce a conceptual framework for personal recovery from an ED based on primary qualitative data available in published literature.
A systematic review and qualitative meta-synthesis approach was used. Twenty studies focusing on ED recovery from the perspective of individuals with lived experience were included. The studies were searched for themes describing the components of personal recovery. All themes were analyzed and compared to the established connectedness; hope and optimism about the future; identity; meaning in life; and empowerment (CHIME) and Substance Abuse and Mental Health Services Administration (SAMHSA) frameworks of recovery, which are applicable to all mental disorders. Themes were labeled and organized into a framework outlining key components of the ED personal recovery process.
Supportive relationships, hope, identity, meaning and purpose, empowerment, and self-compassion emerged as the central components of the recovery process. Symptom recovery and its relationship to the personal recovery process are also significant.
Individuals with lived experience of EDs noted six essential elements in the personal ED recovery process. This framework is aligned with several of the key components of the CHIME and SAMHSA frameworks of recovery, incorporating person-centered elements of the recovery process. Future research should validate these constructs and develop instruments (or tools) that integrate the lived experiences into a measurement of recovery from an ED.
大量文献描述了治疗干预措施和饮食失调症（ED）的康复；然而，这些知识主要是基于症状的，并且来自临床视角，因此在捕捉 ED 患者的观点和价值观方面存在局限性。在这项研究中，我们进行了一项系统评价，根据已发表文献中的主要定性数据，共同构建了 ED 个人康复的概念框架。
使用系统评价和定性元综合方法。纳入了 20 项从 ED 患者的角度研究 ED 康复的研究。这些研究针对描述个人康复组成部分的主题进行了搜索。对所有主题进行了分析，并与既定的联系；对未来的希望和乐观；身份；生活意义；以及授权（CHIME）和物质滥用和心理健康服务管理局（SAMHSA）的康复框架进行了比较，这些框架适用于所有精神障碍。主题被标记并组织成一个框架，概述了 ED 个人康复过程的关键组成部分。
支持性的人际关系、希望、身份、意义和目的、授权和自我同情是康复过程的核心组成部分。症状的恢复及其与个人康复过程的关系也很重要。
有 ED 生活经历的个体在 ED 个人康复过程中注意到了六个基本要素。该框架与 CHIME 和 SAMHSA 康复框架的几个关键组成部分一致，纳入了康复过程中的以人为本的要素。未来的研究应该验证这些结构，并开发将生活经验融入 ED 康复测量的工具。
