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Neurodivergence, intersectionality, and eating disorders: a lived experience-led narrative review.

作者信息

Cobbaert Laurence, Millichamp Anna Rose, Elwyn Rosiel, Silverstein Scout, Schweizer Kai, Thomas Elysia, Miskovic-Wheatley Jane

机构信息

University of New South Wales, Sydney, NSW, Australia.

Eating Disorders Neurodiversity Australia, Sydney, NSW, Australia.

出版信息

J Eat Disord. 2024 Nov 20;12(1):187. doi: 10.1186/s40337-024-01126-5.


DOI:10.1186/s40337-024-01126-5
PMID:39568093
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11580580/
Abstract

Autistic people and those with attention deficit hyperactivity disorder are at a high risk of developing an eating disorder. While there is limited evidence on the relationship between other forms of neurodivergence and eating disorders, research suggests associations between giftedness, intellectual disability, obsessive-compulsive disorder, psychosis, Tourette's syndrome, and disordered eating. Factors underlying disordered eating and/or eating disorder risk for neurodivergent people are multifaceted and complex, encompassing a wide range of intertwined psychosocial, environmental, and biological processes. Moreover, research shows that neurodivergent individuals experience poorer treatment outcomes compared to neurotypical individuals. However, there is a paucity of research in this area overall. More specifically, lived experience-led research remains rare, despite its critical role for improving individualised eating disorder care, as well as mental healthcare more broadly. Indeed, the importance of eating disorder care individuation is increasingly being recognised, particularly within the context of neurodivergence, given the heterogeneous experiences and support needs of neurodivergent people affected by disordered eating and/or eating disorders. Furthermore, despite documented overlaps between various forms of neurodivergence (e.g., co-occurring autism and attention deficit hyperactivity disorder), research looking at eating disorders in the context of neurodivergence through a transdiagnostic perspective is scarce. This lived experience-led narrative review aims to shed light on the intersectional factors underlying elevated disordered eating and/or eating disorder risk for neurodivergent individuals. First, an overview of prevalence data is provided, followed by a thematic framework identifying factors underlying disordered eating and/or eating disorder risk in relation to neurodivergence. A critical appraisal of current eating disorder research and care is then offered before suggestions for neurodiversity-affirming eating disorder care are made. In this view, this paper offers a foundation for future empirical work in this nascent field of inquiry by providing a lived experience-led, transdiagnostic, and intersectional account of eating disorders in the context of neurodivergence.

摘要

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[7]
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本文引用的文献

[1]
Self-identification of autism: Why some autistic adults lack a clinical diagnosis and why this matters for inclusion.

Autism. 2024-11-18

[2]
Patients deserve better information on new drugs.

BMJ. 2024-10-29

[3]
Measuring eating disorders in Autistic people: a proposal for future research.

Eat Disord. 2024-10-16

[4]
An Examination of Perceived Stress and Emotion Regulation Challenges as Mediators of Associations Between Camouflaging and Internalizing Symptomatology.

Autism Adulthood. 2024-9-16

[5]
Autistic People's Experience of Empathy and the Autistic Empathy Deficit Narrative.

Autism Adulthood. 2024-9-16

[6]
Participatory training: Highlighting the need for a more inclusive and interdisciplinary approach to training.

Autism. 2024-10

[7]
The experiences of autistic adults who were previously diagnosed with borderline or emotionally unstable personality disorder: A phenomenological study.

Autism. 2025-2

[8]
Two identical twin pairs discordant for longstanding anorexia nervosa and OSFED: lived experience accounts of eating disorder and recovery processes.

J Eat Disord. 2024-9-2

[9]
The overlap of disordered eating, autism and ADHD: future research priorities as identified by adults with lived experience.

Lancet Psychiatry. 2024-12

[10]
Experiences of intensive treatment for people with eating disorders: a systematic review and thematic synthesis.

J Eat Disord. 2024-8-14

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