Division of Rehabilitation, Ageing and Wellbeing, School of Medicine, University of Nottingham, Queen's Medical Centre, Nottingham, UK.
Division of Psychiatry and Applied psychology, School of Medicine, University of Nottingham, Nottingham, UK.
Health Expect. 2020 Jun;23(3):691-706. doi: 10.1111/hex.13049. Epub 2020 Mar 17.
Patient and Public Involvement (PPI) in research ensures that publicly funded research reflects the priorities of the people who will be affected by its results. Co-research, a branch of PPI, is equal partnership between academic researchers and members of the public, who steer and conduct research together.
To propose a model for good practice in co-researching with carers of people with dementia, by reporting and synthesizing the personal reflections of the academic and lay researchers around the methodological issues, benefits, and challenges of co-research.
An academic researcher and two lay researchers with lived experience of caring with someone with dementia collaborated in all stages of a qualitative research study, including development of the research protocol and topic guide, data collection, analysis and synthesis, and dissemination of findings. Throughout the study, the academic and lay researchers annotated reflections of their experience in personal diaries. Data from the diaries were synthesized and mapped out in a model for good practice in co-research.
Co-research yielded benefits for all those involved and on research outputs. There were practicalities and challenges that required extra resources, in order to make the involvement of lay researchers meaningful and effective.
The model for good practice illustrates overarching and stage-specific guidelines, which can inform researchers and members of the public wishing to undertake good practice in co-research.
患者和公众参与（PPI）研究确保了由公众资助的研究反映了将受到其研究结果影响的人群的优先事项。共同研究是 PPI 的一个分支，是学术研究人员和公众之间的平等伙伴关系，他们共同指导和进行研究。
通过报告和综合学术研究人员和非专业研究人员在共同研究痴呆症照顾者方面的方法学问题、收益和挑战方面的个人反思，为共同研究提出良好实践的模型。
一位学术研究人员和两位有照顾痴呆症患者经验的非专业研究人员在定性研究的所有阶段都进行了合作，包括研究方案和主题指南的制定、数据收集、分析和综合以及研究结果的传播。在整个研究过程中，学术研究人员和非专业研究人员在个人日记中记录了他们的经验反思。从日记中综合和绘制了一个良好的共同研究实践模型。
共同研究为所有参与者和研究成果带来了收益。有一些实际情况和挑战需要额外的资源，以便使非专业研究人员的参与具有意义和有效。
良好实践模型说明了总体和特定阶段的指导方针，这些指导方针可以为希望进行共同研究的研究人员和公众提供信息。
